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Friday, June 28, 2024

Something's Blocking the Sunshine

 The past couple of days have been a bit rough. I'm so fatigued and blue that I can't believe there's a sun shining outside my windows.

It's so weird how the mind and the brain work. You can be so happy and energized on a dark and cloudy day, yet so sad and gloomy feeling on a day filled with sunshine. I could hear my neighbors out on the front patio today, chirping and chattering away like little birds while they soaked up some of the good weather. I was actually a little annoyed. Why can't I feel like that today? 

I thought that getting out into the sunshine air outdoor air would blow away some of the blues. I walked over the the neighborhood store for some pudding and soda. It's the only place nearby that carries Cokes made with real sugar.  I did feel a little bit better for a minute, but then all I wanted was to get back home and rest. I was positively worn OUT by that short little stroll. Insane,

Of course, I know that part of this is sarcoidosis. Knowing that doesn't make me feel better. Just thinking about it now makes me feel tired. As a matter of fact, I am forcing myself to write this post before the fatigue hits me again.

Tomorrow, I am going to get back to reading the Bible. That usually does make me feel better. I haven't spent as much time as I'd like reading Scripture since I finished the last full read-through. Maybe I need to get back in the habit of reading a little before bed or listening to the audio version as I fall asleep.

Next week, I have family coming into town. That should make me feel SO much better. In the meantime, for those of you who believe, keep me in your prayers.

Peace

--Free

Tuesday, June 25, 2024

Dental Update #4

It's now been almost exactly 3 weeks since I had my uppers pulled. I have been back for the follow-up so the dentist can see how well I'm healing. He's really pleased, but he's very meticulous. He shaved off a little bit of a "spur" while I was there. And when he mentioned that he was going to be "shaving" that spur, I almost threw all over the place. He was surprised at how queasy I got but my brother gets me completely. Later on, he said that he bet the dentist now understands why I was so gaggy about all the blood before. Lord.

Oh well. Now I can get the bottom teeth done next month, hopefully. Then those extractions have to heal up before I get any new teeth. At least most of my toothless time will be during the winter.

While I am waiting, my biggest gripe has not been about vanity. It's been about food!  If nothing else, this ordeal has been a great lesson about appetites. Since my food choices are so limited right now, I'm losing weight like I did when I was younger. My plan is to keep the smaller meals when I do heal - I mean, after I eat my way through the state...

Seriously. For a couple of days, I couldn't make myself eat any of the soft foods I'd been depending on. I have been eating a rotation of Cream of Wheat, rice, potatoes (mashed, not mashed, sweet), beans (cooked to as soft as I could get them and with softly-fried hot water cornbread), Greek yogurt with honey, Greek yogurt with milk and honey, and then I added some Carnation Breakfast drinks.

I realized I needed the vitamins from the Carnation drinks when I was getting even more fatigued than usual and feeling blah more often than ever. It's amazing what little changes in a diet can do to you. When I get through this, I might never eat mashed potatoes again! On the other hand, I am down about 14 pounds. I'd be losing more weight if I had the strength to do at least a little exercise...

My brother and SIL are so sweet. Every time I see them, they ask what they can cook for me. On our way to an appointment the other day, my SIL asked if I wanted to swing by a fast food place to get a shake or some ice cream. I jokingly requested that they buy a piece of chicken just so I could lick it. Okay, I was half-joking.

Anyway. Today I decided to jazz up my Carnation Breakfast drink. It's decent-tasting but it's thin and not (in my opinion at least) very satisfying. I got the chocolate flavor so I added a couple tablespoons of Greek yogurt and blended it all up. At least it felt more like a liquid meal than before.

I was going to get some kind of meal replacement drink mix but, not only did they cost more than my regular groceries, but it was hard to find anything with my preferences:

  • No artificial sweeteners
  • No high fructose corn syrup
  • No invert sugar
  • No stevia
  • No artificial colors
  • Nothing with the word "soylent" in it. (I only read the old book that the movie was based on, but someone just had to tell me about the movie. Ick.)
I couldn't find a Boost drink in chocolate and I don't like vanilla or strawberry flavors in drinks. Ensure has chocolate but their product line is so varied, I got tired of weeding through to find something with the rest of my wants. 

As far as the dental work, the top is all healed up and I'm getting ready to start having all the bottom down. And I know this sounds really strange, but I've gotten so used to having no top teeth that I'm going to have to adjust...

Right now, I am fighting off a new cold. I'm drinking garlic water with honey as I write this post. Keep me in your prayers. The time is going by slowly but I'm looking forward to the end results. I know it will be worth it. And, on the positive side, I am saving a lot of money on groceries! 

Peace
--Free


P.S.: I recently learned something that terrifies me. Apparently, wearing dentures takes practice. I'm pretty sure the dentist mentioned that but it only hit me when I saw it online. I will have to get used to eating and talking with the dentures. Now I have something new to keep me up at night.

Saturday, June 22, 2024

Stirred Memories

 I have never watched the film but I just finished with a library copy of the audiobook "The Help". It stirred up memories of a job my mother once had.

I was born in 1961 and when I was about 3 or 4 years old, my mother had a job working for a white lady in Texas. Mama was a military wife and Daddy was temporarily based out, I think. So Mama stayed behind in the Midland/Big Spring area. 

The lady mama worked for was another military wife but her husband was an officer. She had a daughter about my age - I think we were within a few months of each other's age. I will call the mother Anna and the daughter Jane.

My mother's experience working for Anna was not much like what was portrayed in the book. But she did look after Jane and she did light housework for Anna. 

As I was listening to the fictional story, I kept recalling bits and pieces of what my mother told me and my sister about her years (it was almost 2 years, I believe) working for Anna. In my mother's case, she and Anna treated each other more like friends than anything else. She called Anna by her first name and Anna called her by her first name. My mother and Anna often had coffee and light meals together when Anna wasn't out doing whatever she and the other officer's wives did during their days. I believe Anna spent time with scheduled socializing - lunching, organizing drives and such. 

I did ask my mother what it was that she did for Miss Anna ("Miss" because I was raised right, not because Anna was better than us) and she said she did some laundry and took care of Jane during the day. Basically, Jane was at our house as much as Mama was at Anna's. 

The one thing about my mother's situation that matches the ladies portrayed in The Help was that she and Anna didn't socialize much outside the hours Mama was working for her. I cannot imagine that either of the women would even want to spend time together outside Mama's working hours. This was around 1963 and both ladies were Texas born. Their relationship was probably oddly casual and friendly for the times as it was. 

The only reason my mother ever told us about Miss Anna was that she and Mama exchanged Christmas cards for years and I asked about this woman who stayed in touch As we moved around the U.S., somehow the two women kept in touch that way. When Miss Anna died (I think I was about almost 30) Jane called to let Mama know and she took up the Christmas card exchange. Jane sent photos of herself and her young family for several years. 

We made a move from Alaska to Arizona and Mama and Jane lost touch with each other. I don't remember if it was because we'd moved or that Jane had moved and somehow a card didn't get forwarded.

When Mama died and we were all going through old photos and scrapbooks, we ran across a photo of Anna and Jane when Jane must have been about 7 or 8. We only knew who they were because their names and date were noted on the back. I'd never thought before about what Anna and Jane must have looked like. In the old photo, they looked like any other mother and daughter of that time. They were posing side by side in summer clothes and they looked very touristy. Miss Anna was very tall and thin and she was holding a lit cigarette in one hand while her other hand was resting on the back of Jane's neck. She wore large sunglasses and had a scarf tied over the back part of her hair. Jane had her head tilted and one eye squinted against the sun. She was lanky and plain but looked happy. 

Listening to the fictional story about black maids with their white employers, I tried to picture Mama ever being in such a bad position as some of those women and I just could not. Mama had put up with people calling her "colored" back in the day because that wasn't impolite at the time but I remember she once sniped at a man in a grocery store when he casually addressed her as "gal". 

Mama might not have had to deal with the indignities of those fictional maids but I remember things from the late sixties and early seventies that still shock me now. I remember traveling as a family when Daddy was reassigned from one base to another. There were places it was not safe for a black family to drive through at night. There were many lodging places we weren't welcome to stay so we would sleep in the station wagon. 

It's probably hard for someone younger than I am to even imagine a time when racism was so blatant and tolerated.  Most younger folks probably feel like that was a time way, way back in the past. But I am 63. My paternal grandfather's mother (I have her obituary) was the daughter of slaves. She was treated not better than a slave because of the times and place in which she lived.

Doesn't it feel like slavery was so much longer ago? Sometimes, my young relatives are astounded to know that I met this woman who was the daughter of slaves. I think this is when I was about 7 or 8 years old and, for some reason, I remember her clearly.

I'm just sitting here now, thinking about all these connections to the past. I'm thinking about how far we all as citizens have come and it somehow doesn't seem far enough. Time is so weird.

My step-grandmother who died just 4 years ago was a little girl of about 10 when Bonnie and Clyde were doing their thing.

Weird, right? Think about people in your own family. What famous event or person was current when they were alive? What news was making the headlines? What were they learning in school? It can be very interesting to think about.

Time is weird and strange and wonderful. I spend a lot of time thinking about it.

Anyway, I wish my mother was here because I have so many questions about times that are only secondhand memories for me.

Peace

--Free

Saturday, June 15, 2024

Dental Update #3

 Yesterday, I dared take a really good look at myself in the mirror. Before today, I would almost enter the bathroom sideways so I wouldn't accidentally catch a full glance. Silly woman.

My first thought as I studied myself was "I'll be a really cute little old(er) lady one day". That made me smile and, Lord have mercy, with that smile, I saw my mother looking back at me! When I was young and thin, I looked like my father. Now that I'm old and fa, uh, heavier, I look like Mama. Without my top teeth, I dang near am Mama!

When I got through laughing at this, I had to text my older brothers (they haven't seen me in person for a while) and share the humor. 

Bro 1 is quick to respond.

Funny man, Bro 1! 


We are so silly! I do love my entire family so much that I sometimes get overwhelmed with the joy. #WeAreFamily

Anyway. I know they will try to make me feel beautiful, teeth or no teeth. Hopefully, soon, with teeth!...

I'm pretty sure the last of the stitches is dissolving or something. They can't go away fast enough for me. When I get the other teeth removed, I am going to ask the dentist about some kind of gum guard or something to use while I eat. Just thinking about my tongue hitting those stitch strings takes my appetite. Shoot, if I really wanted to lose weight, all I'd have to do is get some long-term stitches in my mouth... Ugh! When I get the bottom teeth done, I'm going to ask the dentist if there is a way to cover them with wax or something - just long enough for me to eat.

Also, something weird is happening with my coffee. I can't seem to enjoy it for some reason. My little brother (Bro 3) thinks that will pass when I get my new teeth. All I know is, I had to make a Dalgona coffee today just to enjoy my java hit. Guess I'll be doing that for a while.

Finally, I went out in public for the first time. I had to go and get laundry quarters at the bank. I willed myself not to wear the mask but, as soon as the teller came to the counter, I put it on. Maybe when I get the rest of the teeth removed, I can be braver.

So, I'm up to 10 days with the first extractions. I'm eating a little better. I got some Bisto to liven up my potatoes. Between the potatoes and Cream of Wheat, I'm doing okay. I am going to whip up a veggie smoothie at some point. I know my body wants something green - maybe Spinach and Kale with some kind of sweet juice? ~shrug~

I will do another update soon. If I get really, really daring, I might put up a picture...

Peace
--Free



Sunday, June 09, 2024

Dental Update #2

 This is my 4th full day without my upper teeth. I cannot wait until I get the others out but I don't know when that will happen. I follow up with the dentist next week and, hopefully, my upper plate has healed so well that we can move forward soon.

Now, let's talk about food. I'm down 12 pounds already. I think I gagged away 5 of those pounds while I was dealing with the first day! As I mentioned in a previous post, I have been able to eat Cream of Wheat, and what a lifesaver that is. But it's pretty boring so I had to find some other foods to eat.

Two things I learned during this process: 1) Eating a lot of Cream of Wheat is very, um, moving - and I'm talking about the tummy! 2) Making mashed potatoes from scratch is a breeze.

I had never ever made mashed potatoes before. I didn't even realize that until I had to do it. My SIL, who thinks I'm such a good cook, almost fell out when I told her I was making the dish for the first time. I had to look up a recipe.

Anyway, I killed the mashed potatoes recipe, if I say so myself. I figure if I have to eat soft foods, they don't have to be bland. For my potatoes, I roasted some garlic cloves to mash into the cooked spuds and added sea salt (just a smidge) lots of butter, some milk, and a bit of cream. Let me tell you what! Either those were some good potatoes or I was just starving. I can't wait til I get my fresh can of Bisto gravy...

So, as far as food while I go through the toothless part of this journey, this is my repertoire:

  • Cream of Wheat (with cinnamon and brown sugar or honey)
  • Mashed Potatoes (with or without garlic, gravy, or cheese)
  • Greek yogurt (with honey or canned pumpkin pie puree, or fruit and/or juice)
  • Mashed sweet potatoes (with spices and butter)
  • Smoothies
  • Ice Cream and sherbets
  • Lemon & honey water
  • Water, water, water, water! I can't have sparkling water yet though.
  • And (hopefully, soon) "flaky soft fish", I heard that might be okay. I'm thinking salmon or cod.
And let's talk about my beloved Java Juice. I was so excited when the dentist gave the okay for me to have coffee. Until I realized that I had to drink it lukewarm. Also, as with any liquid, I can sometimes feel the stitches and that grosses me out. I've had 2 cups in 2 days and I didn't finish either.

My fatigue is worse than usual. That is not totally out of the ordinary though now that I notice I have an infusion coming up soon. I usually feel better after that. Also, I'm not getting my usual coffee boost!

Now that I'm past the first couple of rough days, I noticed that I didn't have a lot of pain. I am tender right under my nose so I have to be careful when blowing my nose. I have some tenderness in the roof of my mouth and I think that is from the shots of novocaine. Other than that, I haven't had to go overboard with the Tylenol.

So things are progressing. I'm just anxious for these icky stitches to finally dissolve away. They are just noticeable enough to be annoying when I am drinking anything. If I had a stronger stomach, I would use some sterilized scissors to trim the loose ones. But that ain't gonna happen! 

I will keep updating, of course. For now, I am just thankful that the journey has begun.

Peace
--Free

Friday, June 07, 2024

Dental Update #1

 Well, I did it - or had it done. I now have no upper teeth. That was on the 5th and today is the 7th.

As happy (and blessed) as I am to be able to get this dental work done, I feel another kind of way about it. 

The dentist and his assistant were amazing. I feel zero pain during the extractions. Like that told me beforehand, the shots to numb me would be the only painful thing. Even that wasn't so bad. What amazes me even more is that I now realize that not only did the dentist extract my teeth, but he shaved bone and, - gag - trimmed things...

The whole thing took under an hour. That was the easy part. The hard part was afterward.

I'm someone who has a very sensitive stomach and an intense imagination. That doesn't help when I have to chomp down on gauze to staunch bleeding. Even when the bleeding stopped - which it did after about 7 hours - there are the stitches that I can feel if I accidentally touch them with my tongue. Ugh!

I remember joking about all the weight I would lose once I was no longer eating so many carbs (that are easier to chew). What I didn't realize is that the weight loss starts the day of the extractions!

The days before the extractions, I wasn't very hungry so I had some eggs and some toast with cream cheese and marmalade. On the day of the extractions, I didn't eat anything, just had my morning coffee. My appointment was a little after noon and I'm not a morning eater. I should have eaten. I should have pigged out!

I came home with gauze stuffed in my mouth. I wore a mask because the gauze was so messy and awful-looking. I had to change the gauze every 10 to 15 minutes at least. (Remember my weak stomach? Yeah.)

I couldn't even stand to drink water without gagging. I have to force myself because I have antibiotics and Tylenol to choke down. Ugh. It's better now that the bleeding has stopped.

Today, I drank hibiscus tea with creamed honey and for lunch, I had some Cream of Wheat with Ceylon cinnamon, nutmeg, brown sugar, and a little bit of milk. Hot cereal never tasted so good! I think that Cream of Wheat is going to be my main thing for a while.

Apart from that, I mostly slept, changed gauze, gagged (and vomited once), and mourned the loss of my teeth.

Someone online made an interesting statement about having to lose all your teeth. Everyone tries to make it sound like it's such an easy thing to do - doing it is easy, but dealing with it is a different thing. This person made the point that losing your teeth is a sort of amputation. No matter how old you are - I'm 63. It's a pretty big change.

Now, I am not vain. I just want some chompers that I can finally eat with. I want to be able to choose my foods for how good they are for me rather than how easily can my teeth handle them. Also, I'd like to be able to smile again without feeling so self-conscious or to talk with friends without worrying about my gums bleeding. Yeah, that was a real thing.

I have a niece who is a bit younger than I. She had to have implants after an accident. She said that I am going to be so glad to be able to eat and drink things again without worrying about the pain or loose teeth. She said that recovery was challenging but that the end results were worth it. I trust that.

I will try to update as this goes. I have nothing else going on and no energy to do much. I'm awfully tired. Tomorrow I will have coffee for the first time! And I want to see if I can get some chores done around the apartment.

Peace

--Free




Saturday, June 01, 2024

I'm Finally Doing This...

~Folks, I am going to be losing some weight because I am having these 'toofies' of mine taken care of!~


For a long while now, I have been having dental problems. In general, I started having bone problems a while before my Sarcoidosis diagnosis. I cracked a rib sneezing once and didn't think much about it. I was told that it does happen. Once I was diagnosed. my doctors scheduled regular bone density scans - I think it was every other year at first, but I will be having one soon after a three-year lag.

I always told people that my bone and teeth issues were from one of the medicines I take. I was completely wrong. The bone problems are from the sarcoidosis. Aside from every other horrible thing about this disease, it causes bone loss. 

My dental issues started over a year after the diagnosis. I cracked a front tooth and had to have a crown put in. The dentist mentioned the bone loss in my jaw and said I would have to think about doing something about it at some point. At the time, all my other teeth seemed okay. Fast forward to about 4 years ago and, yeah, the problem got worse.

At first, my canines were just a little loose. Then some of the teeth on the side got weak. I was at a family barbecue and when I took a bit of meat, I felt one of my bottom side teeth shift and when I released the meat the tooth lifted up a bit. Good Lord! 

I slowly started losing teeth until I couldn't even smile at people without wanting to cringe. When I finally saw a dentist, the skies opened and I heard harps. My insurance would cover everything - removals and replacements. I was thrilled for 2 days. Then I got the call that this particular dentist wouldn't be able to treat me because of my sarcoidosis. He worked in a community clinic and was concerned about liability.

That was 2 years ago. I felt like I was being punished or something. Some other people were going to the clinic and having their dental work done. A neighbor of mine had her extractions and dentures done within a few weeks.

I wasn't being punished, I was being blessed. Had I been treated by that first dentist, I might be doing what my neighbor is doing: not wearing her dentures and complaining about the work that was done in her mouth. 

As I have learned to do in my older age, I prayed about the situation. I found another dentist but they were a few hours away and I didn't feel good about the practice. Then, one day, my little brother noticed a dental office right down the street from where I live. The practice is well-spoken of around town and the staff was lovely. The dentist is a young dude (I joke that "he's ten!") and happens to be a Christian.

On Wednesday, I'm having all of my upper teeth removed.  We are doing things in stages so I have time to heal after each appointment.

I am anxious, excited, nervous, and happy. Thanks to my family, I don't have to worry about anything my insurance doesn't cover. When I tell people I'm blessed, they think I'm just saying it, the way people say "Have a nice day". When I say I'm blessed, I'm giving my testimony. 

I will end this now and try to come back to update you on the process.

Peace

--Free