Getting Back In Shape

Sooo... I am on this "diet." LOL

After going from 145 pounds in July up to 185 now, my doctors have lowered the dose of steroids they have me taking. Maybe now I can start losing some of this weight I've put on. Not for vanity sake, but just so that I can get around better, feel more comfortable and, hopefully, get rid of the awful backaches I've been having. My little old frame just was not built to carry this much flesh!

I'm not really doing a specific diet, just keeping things to moderate levels. My main intake consists of cereals, oatmeal and yogurt. Oh, and coffee!

The yogurt has been the easiest to adjust to. I just take some plain Greek yogurt and mix in a little bit of some flavored yogurt. I can eat that several times a day, no problem. Oatmeal I also love, but it gets a little boring.

I'm really hoping that the pounds will come off now that the steroids are lowered. Man - I cannot even remember the days when I struggled to keep 120 pounds on myself! The days of sizes 0, 2 and 4 are LONG gone. I had to break down and get a pair of jeans the other day and I ended up with a size 14... The only thing loose are the legs of them.

But I am thankful. I am still here, not felled by this disease or some worse one. I am still able to voice my prayers to God, still able to see His holy Word, and still able to jump and shout in joy.

When I get past a lot of the physical stuff, I guess I will update the picture I use for my online presence. That one I have up is almost 8 years old, I think!

Keep me in your prayers, all.

Peace
--Free

Monday, February 06, 2006

February 6, 2006.

That was when I first started this blog. My FIRST blog. My very first post was "Introducing Free Being Free." I was about to leave Alaska and move to Arizona. My life was a scrambled puzzle and I was using the blog for comfort, advice, attention... Whatever.

I was such a different person then. Calling myself a Christian but not living like one. Lonely but not wanting to seek the right things in my life. I could have been settled, but I wasn't content.

If I could go back and do things differently, I would still have sold the house my sister and I owned, but I would not have gone to Arizona. I would not have ended up mixing family with business.  I would not have gotten married again.

Woulda, shoulda, coulda...

But who knows - my life might have been better as far as material things, but I might not have come this far in my walk with Christ. I think I needed the bad times and the heartache to get here. I needed to fall to my knees to call out to God. If that's it, then it's all been worth it.

I have to tell you, I thought about deleting some of the more revealing posts. I didn't like looking back at some parts of what I've gone through. Wanted to cover up a lot of the "old" me so that it wouldn't reflect badly on the reborn me. But, no. It's out there and maybe it needs to be. Maybe someone who is going through their own changes will be able to relate to it and use it to see what Christ can do to transform a life. Forgive me for the foul language and the worldly attitude of that "old" me.

So, still here. I am truly Free and I thank God for that.

Peace
--Free

Update on Newest Blog

Have finally come up with a name I like for the newest blog: Friend or Faux.

Feel free to check it out, but only if you really want to think about your Christian walk.

What Is Your Joy Based On?

(Wrote this on my phone the other day in the middle of waiting for a doctors' appointment. It was on my mind because of how I see so many people feign joy.)

Don't use what makes you happy to make someone else sad.

I know people who can never be happy unless they compare their joy with a negative in someone else's situation. If they get a new toy, it's not just a good toy, it's better than so-and-so's. If they accompliish something positive it's because they were smarter than someone else...

You know the type, maybe. They are ecstatic about some good fortune of theirs until they can't beat someone else over the head with it. You can almost see them deflate, their joy seeping out of them...

And it's not that their toy isn't better or that they weren't smarter - it's that their joy probably wouldn't exist without someone else's lack of joy. What kind of pleasure is that?

Joy should be, I think, a completely positive thing. If your joy is based on comparisms to what someone else is or has, then REAL joy will forever be out of your reach.

Only someone who is, at their inner self, unhappy needs this - call it Competition Joy or Showoff Joy. What will happen to them when others have more than them? Will they be able to find joy in their lives when they have no one else's situation to look down over?

No, joy should be what it is: just joy for itself. Joy in your best times and in your worst times. God-given and pure.

We should never focus on someone else's misfortune in order to see our own joy. My being able to fill my home with roses is nice, but not if I use it to point out the stink in someone else's home.

Just saying.

Peace

--Free

Man Worship?

When Steve Jobs died the other day, I wasn't too surprised at all the news and comments. He was kind of a big deal.

I was surprised when the news and comments kept going and going.

People on social networking sites were admitting to being depressed and "devastated" by the loss of this man. Someone on my twitter line spoke of going out "right now" to buy a black turtleneck. In spite of someone having died, I almost had to laugh at the silliness of it.

We saw this same thing with Michael Jackson. I'm sure we'll see it again when another "star" of the world passes. Just like with Michael Jackson, I was disturbed by the way so many people were reacting about the death of someone they don't personally know - other than his products. I hope that since so many people admired him, the Christians in that crowd had prayed for him all along to be saved.

What really got me was how many Christian people seemed to be in deep grieving. I see where pastors and other church leaders had to chime in and talk about his innovation and genius and contributions to society. Of the Christians, I didn't see where many brought up the fact that they hoped he died in salvation. (The man was a Buddhist, not a Christian.) I didn't hear a cry of hope that he had, at the last minute, accepted Christ. But I heard plenty about his "genius" and ability to anticipate tech needs...

Okay.

But just a thought: if a man like Steve Jobs - who, as it seems to be, was a very smart man but maybe not the nicest - could be worshiped like this, what would it take for us to worship anyone?

Maybe it's just me, but I have to wonder if the Antichrist came along, would we be so easily impressed? I mean, let him invent something better than the i-products and we'd probably fall down in a stupor of gratitude.

Yeah, I know, I'm being a little simplistic, but...

Watch yourselves, people. Don't be so quick to be blinded by the outer of a person that you don't pay attention to the inner.

By the way, out of all the accolades heaped upon Steve Jobs, I found this one article (so far) that takes a closer look at the man and the company. (And, yes, I can tell that the author is peeved that Jobs products provided a lockout on a lot of lascivious material - which I applaud!)

Peace
--Free

I Don't Like Change!

I've said it before and I'll probably say again the next time something happens:

I DON'T LIKE CHANGE!

I have someone in my family who just got a great opportunity to grow and spread her wings, so to speak. The only problem is: she has to leave the state to pursue this.

Booooo!

As you can tell, I am being so very mature about the whole thing. I can't help it. I don't like being apart from family - not even when they tap dance on my very last good nerve. I like having them around and close by.

I think I got this trait from my mother. She liked having her brood all around her. We always had big, full homes and holidays. When a crisis hit, we were mostly close by to all pull together. Good time and bad times, I remember lots of food, lots of family and just lots of love (or something like it).

*sigh*

I just had to get that off my chest. Matter of fact, I am procrastinating. I'm supposed to be over at this relative's house right now to help her get packed up for the move. Um, yeah. I'll get over there in a minute... LOL

So, change.

I'll go along with it (I have no choice), but I won't like it.

Peace
--Free

Not Here, Over There

LOL


I am trying to direct more attention to my other blog right now. It is still very new, but has lots of posts already. It's links to news stories with my commentary (and yours, if you want). I know that it would get more attention if it was about sex, drugs or rock and roll, but it's not. The blog is focused on the daily life of Christians living in and impacted by the world.


Check it out and spread the word. (I will continue posting here on Being Free also.)

Memories & Vision

I remember having a conversation with my sister and one of my brothers about which ability we would lose if we had to choose one.  My sister has already lost her legs and my brother is losing his voice. I think I said I just didn't want to lose my sight. At the time I didn't know about my impending sarcoidosis. How things change!

The sarcoidosis has really impacted my eyesight and my memory. I have to see an ophthalmologist soon to get a prognosis on my vision, but in the meantime, I am really having struggles with my memory.

I can't tell you how frustrating it is to have memory problems. I have one of those weekly pill sorters with slots for morning, noon, evening and bedtime. Believe me, I couldn't manage my meds without it. Yesterday, I had to call in some refills and, so, I left a couple of days worth of meds unsorted. Just a minute ago, I was taking my noon meds and could not remember if I'd taken my morning meds or not. I'm pretty sure I did sort the ones for today. I'm pretty sure that the reason I got confused is because I thought today was Friday and not Thursday... At any rate, this is just another one of those memory flubs.

Whenever I park in a lot, I hope the rows are numbered so I can remember where I left the car. Unless I take mental note of the row number and then forget! (I'm starting to write it down these days.)

There are so many times when I can't remember the smallest thing. I've been doing some sewing projects. If I stop to go to the bathroom, when I come back, I find myself looking to see where I sat the needle and thread.

Some days (or moments) are better than others. Sometimes I have no trouble remembering my phone number or zip code or year of the car I drive. Some days I do.

The most inconvenient thing is when I am driving to a familiar place and forget how to get there.

Going to the clinic where I have my appointments or to the kidney center where my sister gets treatment - these should be imprinted on my brain. I have had several instances when I start driving and get lost in my mind. I usually just keep driving until the memory of directions kicks in. I think the only reason I don't forget how to get to Walmart is that it's a straight shot! Unless I have to go the other location in a different part of town.

My eyesight is still decent. I have my glasses and they still work. I worry about the feeling of pressure behind my eyes though. If you've ever had your eyes dilated, you might be familiar with what I'm talking about: a tightness and a sense of muscle fatigue just around the area. I'm not sure I want to know what the eye doc is going to have to tell me.

*sigh*

So, eyesight or memory? Looks like I might be losing both.

Peace
--Free

Unseen Blessings

I was just thinking about the many blessings God grants us throughout our day that we don't even notice:

• The sickness we didn't get.
• The step we took and didn't fall.
• The car wreck we almost had.
• The money that didn't get delayed or lost in the mail when we really needed to have it.
• The job we didn't lose.
• The breath we did take!

See?

So many things that we missed and that could have just ruined our day or that could've changed our life. Things that did or didn't have to happen.

Whenever I have to take care of business and get a really helpful and courteous customer service rep, I make sure to let them know that I appreciate them. Sometimes, I report their good service to a higher up. I usually tease them that no one minds reporting bad service very few take time to report the good. That's they way it is with our blessings.


So often, we get rushed by everyday life and forget to stop and thank God for the times when he saved us from doing something stupid or dangerous or careless. Many times, we don't think about what He has saved us from going through.

The other day, I was checking my meager and dwindling funds and worrying about how broke I am. I am really living a little on the edge - what with doctors' bills, hospital bills, upcoming necessary medical tests, prescriptions... I don't know how I did it, but I kept going and going until I had really worked myself into a state of anxiety and despair! I was in the car, idling at a red light, with tears about to fall, and I looked over and saw a homeless -looking alcoholic. How much worse off are so many people, I thought. That poor man probably was estranged from friends and family, lost in his disease and maybe not even caring that he is in that awful situation. Yet, he was smiling.

Wow. The Devil is smart.

I shook myself and remembered all the blessings I do have. I had to remind myself that I was going to be sleeping in a bed that night, loved and surrounded by family. The bills aren't keeping me from getting at least some medical help. My disease doesn't have me living on the streets. Somehow, with the help of family and friends, I am able to get my prescriptions. I am not (for the most part, yet) out of my mind. I even had to remember that I was driving a car and not having to walk to where I needed to go.

Blessings too many to count!

But, see, one of the tricks of Satan is to keep us focused on what we think God isn't doing for us. What we need to remember is that, because we are His children, God knows us and our needs. He has seen the beginning and the end of our story. He has His reasons for what he does. (Now, we make trouble for ourselves at times, just by trying to go our own way! And, still, God forgives and loves us.)

So, the next time I feel sorry for myself, I hope I can remember how much I have to be thankful for. One day, this race will be over and we will be Home. For now, let's remember to count those unseen blessings.

Peace
--Free

Living Ourselves To Death

Life could be so much simpler than it is. Mankind seems to thrive on complicating things and creating chaos.

That's the thought that came to me while I was having to scurry to take care of some crucial business this morning. In a better world, I would have gotten up feeling rested and read my morning Bible verse with a prayer before getting on with my day. Instead, I woke up feeling overwhelmed and rushed.

We live in a world where everything is truly a race to be won. I think of it as "living ourselves to death."

You take something as simple as clothing. Clothing is there to cover our nakedness. Simple, except we don't see it that way. We've made an industry of it. You can't just cover yourself, you have to wear certain colors and textures to suit the occasion. Instead of all clothing being decent and acceptable overall, we've made it almost socially mandatory to wear certain things for certain occasions.

We can't just have transportation. We have to have a certain type of car or truck, in  a certain color (which changes from year to year like some kind of "fashion statement.") Even if you have a certain model, you might have the less desirable style... Really? Isn't the whole point of transportation is safely getting from one place to another? Why should it matter so much what kind of status or fashion statement we are making? It's so silly.

We humans are such strange creatures. We can't have anything without trying to up the ante.  We can't just have soap to be clean, healthy and less offensive. Couldn't stop there. Nope. We have to add other smells and additives. We don't want bodies that are simply clean. We have to have skin that feels one way or another. And in the end it's still just skin. With all the smells that add to lotions and soaps these days, I don't remember what a real piece of fruit or spice actually smells like if I haven't had it for a while. My nose is confused! LOL

Hair is just hair if you have it.  It covers the head. I don't know how we got to the point where we will sew it into our scalps, weave it onto what we already have, spend thousands of dollars and so much time into beating it into our will.

We have to make an industry out of everything.

I know that we need some of the things we have made. We want to be comfortable and clean and healthy, but we just have to take everything from the simple to the extreme to the silly.

We take everything & put man-made standards on it to complicate it, put out of reach of some or make it into a status symbol. We don't know how to be content and comfortable for long before we start dreaming up ways to give ourselves something else to worry about.

And the result of all of it? We create stress for ourselves. We create self-esteem issues. If you are too poor to keep up with certain "standards," or born with the odd color of skin or hair or body type, you end up in counseling and therapy.

The saddest thing is that we have forgotten how to put the brakes on. We get so caught up and carried away by the stream of social movement that we don't stop and wonder why. All the time and money and effort we waste on the silliest things would be better used in our being courteous to fellow human beings and good stewards of what we have.

We have forgotten to use our hearts as much as we have learned to use our heads.


We could just be simply living, but we invent ways to keep busy with being complicated. It's such a cycle of "enough is not enough."

A big effect of all this is that we adjust ourselves to the messes we make. For instance, instead of having people who are brutal, jerks, rude or dangerous meet a more decent standard, we just accept it and try to learn to protect ourselves from them. (And if you think people can't learn to be decent, just think of how easily they have learned to be the way they are. It's all in what is accepted and tolerated.)

We reward the wrong things. We reward the greedy and ruthless by calling them "ambitious" and "go-getters." We've stopped rewarding honest hard work because we'd rather reward anything that makes the most money.

We think of ourselves as being "modern," "progressive," and "forward thinking." We talk of looking to the future and "the next big thing." What we have forgotten is the simple pleasures in personal joy and contentment. I'm pretty sure that "contentment" is not a word that we want to think about if we have to give up "ambition."

Peace
--Free

Unanswered Prayers

Now that I am older, I tend to do a lot of reflecting on my life. I think back on things I've done or not done and can see now the results I live with. There are good things and bad things, but what I notice most are the results of unanswered prayers.

When I was young, I, like so many, hoped for shallow things: more money, better looks and popularity. I wanted to "grow up" to be well known and well liked. I had dreams of being a famous author. Of course, I had the fantasies about the very handsome husband, the large and amazing home, fabulous clothes and cars... Those were things that almost everyone I knew wanted.

These days, even though my finances and health are both in a fragile state, I have to just thank God that He didn't answer my greedy prayers! I don't know where I would be spiritually if I'd gotten all that I wanted. I don't think I would have grown in my faith and I'm pretty sure I would not be as thankful for what I do have.

When I look at people who did get what they wished for, I imagine that that's only a good life for the young who will live to make it out. But not all the young ones who do live that life make it out.

Had my prayers been answered, I might have had the material things while missing out on the grace of the Lord. So, when I reflect on what could have been, I have to think of Psalms 139, especially verses 13 through16.  He has known me and is with me through it all.

Those things I longed for and didn't get are just reminders of eternity. I would not trade my salvation for any of the comforts or luxury this world has to offer, though that's tempting sometimes. I have to remind myself that this world is not my home. I don't want to get too comfortable because my time here isn't promised from breath to breath. While I am here, I am praying for my family and friends - for everyone - to accept the Lord and hold out until we do get Home.

Peace
--Free

Marriage (wish I had known!)

I just threatened to write this post when I was doing the last one, so I might as well get it over with. It's not going to be a long post, but I wish I had seen something like it before I made the decision to get married.

I heard an awesome sermon on the subject recently. Basically, it was about what a wife should expect from a husband. (There is also one for what husbands should expect, but I'm a woman, so...!)

In a nutshell, a woman should expect a man to be a man. In the relationship, he should be the 3 P's: Provider, Protector and Priest. He should be her "covering" and he should take that seriously.

Pretty simple, right? Like I said, if I had ever thought of a husband in that way, I would have been so much more careful in my choices (and I would have gotten it right ONE time, not having to do it twice).

Part of my problem is that while I was a "believer" at a young age, I was not a "follower." That sounds weird, but, like a lot of people, I was a believer in words only. I was brought up "in church" so I just went along. I don't think that I was a sincere Christian until the last maybe 3 years. Unfortunately, I married inside that time. I was not praying over things in my life. I was still operating on feelings and moods.

If I had looked at my husband through the eyes of Scripture - or even looked at myself that way - there is no way I would have gotten married to him. But, again, I was making decisions based on my feelings and moods and wants.

So, for anyone out there looking to get married, you might want to remember to take it to the Lord in prayer before you make that lifetime commitment.


{NOTE: I can't remember exactly which of the sermons spoke of the husband and wife roles. I think it was this one, but, if not, feel free to listen to the others on this page until you run across it. All the sermons are excellent for Bible study and prayer.}

Peace
--Free

Passing Storms

Ah, how interesting life has been these past months (years?)

I've been on rough roads. Beaten down, in despair, depressed, ill, hurt... But through it all, God has been good.

I went to the doctor yesterday for my first major check up after getting this nasty sarcoidosis. That went very well: good tentative prognosis (yay!) and the clearance to go back to non-strenuous work. (And, trust me, I need to be able to work after all these medical bills!) Most of all, the medicines seem to be doing their job and I should only have to be on the 20mg of prednisone for another month or two. That the bill for that appointment nearly put me into heart failure is minor since I was able to pay it - again, thanks be to God. The fact that I can go back to work is another blessing, and the fact that I might possible actually have a job to go back to is even more of a blessing! (I've already contacted my former employer, don't ya know? LOL)

All of this is like having been in the middle of a really bad storm. Right now I feel like it's still raining, but I can see a clearing up ahead. I don't know when it's going to be clear again and maybe I'm living in storm territory, but I know that God will be with me. And I have learned things from what I've been through:

I've learned to be good to people who are going through their own storms. Not just being good to them in the way I'm comfortable being good to others, or in the way that I want to be good to them, but good in ways they need. It's easy to give to people what you don't want yourself, but to give where it might hurt just a little bit is a real deed.

I've learned to be more sensitive to people when they are down. To watch what I say and how I say it. To understand that no matter how down a person is or why they are down is not as important as it is to either say something useful or shut up. LOL. I haven't always realized (until I was so much on the receiving end) how easy it is to poor even just a little bit of salt into a person's wounds. You want to really hurt someone who is already down? Go ahead and talk a lot about what you have or what you are able to do. I've done that in my life, but now that I have sometimes been on the receiving end... Oh, but we do learn the hard way, don't we? And, no, I don't think that it's done on purpose. I think it's done out of either thoughtlessness or out of fear (as in, "Wow, hope I never end up like that!"). For whatever reason it's done, it still hurts.

I've learned to be as thankful in the bad times as in the good. It's like all the sayings: "Hard times builds character," and "Whatever doesn't kill you makes you stronger."

I've learned that God didn't do this to me. The Devil didn't do this to me. My actions, decisions I made in life, and genetics did this to me. Maybe if I had considered God when I was doing things and making decisions, I would have done things differently (please see a future post on marriage!) and not had as much hardship. Because I didn't always pray first over major decisions and actions, I ended up having to pray to get through the consequences.

I've learned that life can turn on a dime. You can be well, fat and content one moment and have it all crash down on you the next moment. It only takes a heartbeat.

I've learned that God does love me. When I was at my lowest, I felt like I deserved to be unloved. I felt like I was worthless. Something in me, though, would always remind me that God loves me. That's what kept me sane.

So, there may be another storm coming. There may be storms for the rest of my life, but God always sends me a reminder of sunshine. One day, we believers will bask in His light. Any storm is worth going through for that.

Peace
--Free

Crisis of Faith

Since I got sick, I have suffered such a crisis of faith. The feeling of being abandoned by God. The feeling of spiritual emptiness. Oddly enough, I know that some of it was caused by the medicine I had to take, and since being on a lower dosage has helped, I have proof of the side effects.

At any rate, I was really struggling to cling to my faith the past several weeks. This morning I had the energy to search the internet for examples of others going through the same thing. If you google "crisis of faith," and scan the articles and blogs, you would be amazed at what you find. Apparently, even Mother Theresa struggled (for FIFTY years!) with this. Personally, not being Catholic, I can't relate to what Mother Theresa felt, but being Christian, with my whole belief being in salvation through the blood of Jesus alone, I can relate to a sermon I found.

I can truly say that this sermon blessed me this morning:  Lenten Series - The Seven Last Words My God, My God, Why Have You Forsaken Me?  I feel it was just the thing I needed. Bless the author! Even if you are not having a crisis of faith, I suggest you go over and check it out because it's such a reminder of what faith is.

The first thing that struck me is that I am not alone. I'm not the only Christian to be tested. Christ himself was tested! Somehow, I had forgotten all about how the Lord cried out from the cross about being forsaken. Being fully human, Jesus was able to feel what we feel and, at that time, he felt given up on. So who am I to feel different?

The second thing that struck me is that all this time, I have been focused on the darkness of my situation - or the Good Friday - when I was ignoring the hope and glory of the light - or Easter. (The author's words are so powerful: "Those were not his last words from the cross." Amen! Jesus' last words were that it was finished.

So, here and now, I may have to go through this human pain and suffering (and it won't be easy; in fact, it may get worse), but one day, when I leave this world, I get to go Home and be with Jesus. Maybe even while I am still here, I will be happy again, but I'm not supposed to be living for this "life." It is for my life in Heaven that I am waiting for.

While I was feeling sorry for myself, I had forgotten about all the other suffering people who have it as bad or worse than me. Think of the little starving babies you see who live in famine, people born into a living hell of war or disease; people who have never eaten like I have or lived in decent shelter. I had not thought of the absolute luxuries I once enjoyed while so many millions of people suffered every day of their lives.

So, this day, I am thankful for this crisis. This struggle I am going through is going to keep me praying and holding on with both hands to my faith and hope for what eternity has in store for me.


Peace
--Free

Attitude & Change

Attitude has a lot to do with life. The meds I am on have affected my attitude, which is why I am being dragged down by this apathy and low-lying depression. So... I am trying to fight back.

First off, I am taking advantage of any moment when I'm not feeling dragged down. When I have a moment like that, I grab it to get something done: clean, plan, exercise - whatever I can. Next, I am going to be talking to the doctor about alternatives to the meds I am on. If he can't adjust them or wean me off yet, then maybe he can give me something to counteract the effects. It's either that or I am going to have to look at being disabled and that's something I will fight hard.

So, this is my life. Funny how fast this all hit me. I still can't believe that just a couple of months ago, I was in a completely different place. I hope anyone who has been following the story is taking it as a warning. A warning to enjoy what comfort and peace you have before it all changes or veers off on a different path. Here are some lessons I have learned:

1. Don't get too comfortable with anything you have - not material things or the people in your life. Appreciate what you have, but be ready to lose it all.

2. Things change. Don't think that because you woke up this morning one way that you will be able to count on that every day.

3. Be prepared for the worst. Your finances, your health, anything that counts as "security" can all go up in smoke.

Actually, I guess all those are really about the same thing: not counting on things not to change. That's what I have learned, but I learned it the hard way.

Peace
--Free

Defined the Problem

 (Just found this blog, which I want to point out has great links. Thanks to Sarcoidosis Experience)


While I was texting a friend, I hit on what the problem is with the medication I am on for this sarcoidosis. All this time that I have been trying to desparately make everyone understand, I couldn't grasp the right word. I've got it: Apathy. (And because this blog is really my only journal of this nightmare I am going through, I wanted to get this down here before I lose any sense of needing to write it.)

This friend of mine - who has been so good to me while I've been sick - texted to invite me to get out of the house this weekend. When I finally got the energy to answer her back, all I could do was be honest and say that I can't do anything until I get over this medically induced apathy.

What a relief to be able to find the word. I've been struggling to put meaning to the way I've been feeling from the moment I started on the prednisone. When I look up references to side effects, I'm not surprised to see that apathy, depression, mood changes - all of that comes up.

This is sheer hell, you guys. When you know what your natural personality is but you can't reach it... I don't know what it is to feel like laughing, talking, being or doing. And I know it's the medicine - which I know I have to keep taking for at least another few weeks.

When I do finish with this stuff, I am going to be so thankful for every emotion, good or bad. Right now, all I can do is be awake or be asleep. My one sort of joy is to sit in the sun and listen to the sounds of the neighborhood. I can't work or really function. I am just in a state of healing limbo.

If you want to even try to know what I feel like, take just one minute and try to make yourself feel numb and empty. Like your whole being is on novacaine. That's what I feel like. I can't find anything to distract myself from the nothingness. I can't write (which is a whole other kind of hell for me) or even lose myself in my imagination.

So, yeah - apathy has got to be the right word. Complete and total.

Peace
--Free

State of Mind

Being hit with this illness has definitely changed my life. I think of not one thing the way I did before. It's as if this whole experience has been life-altering for me.

One of the things I think about a lot is death. I think about what it means to be alive and then to not be alive. One minute, you are just chugging along, doing your thing - working, eating, planning - and then, the next, you could just not be there. I also think about what we mean to each other as people. When I look at the people I love now, I try to imagine life without them. I can't help but think "What if?" - as in: what it they were taken away from me in the next breath, or what if I just don't see them again.

Another thing is that I appreciate things more. Ever since I got home from the hospital, I have been so glad for the good weather. All I want to do is sit in the sun and think about what a beautiful world God has given us. (I told my sister how glad I am that this happened to me in the summer and not during the winter. I think the darkness of winter along with the effects of the prednisone would have driven me past the edge of my mind.) I am hoping desparately that my medicine therapy is over before the sun goes away. I think that if I have the sunshine and warmth, I will be able to survive this.

Like I said, I don't think I will ever be the same after this. Maybe this was a lesson God wanted to teach me: to think more about the NOW of life. It's not like we don't all know that one day we will have to die, but I don't think we respect that fact.

Here is something that a friend of mine said to me recently about faith and death- after my sickness, her getting cancer, and her sister passing from cancer. We were talking about how strong her sister had been in her faith and how she died in her faith. My friend said this: "We all want to be with Jesus, but we don't want to die."

For me, that was so deep. It's true. I live my life loving Jesus and wanting to be with Him. I think about my mother and the people who have already died and how I one day want to see them again. We all want to go to Heaven, but we have to die to get there.

For right now, I want to appreciate life and living. I want to get through this illness and get back to being my old self. I want to be the person who could laugh myself sick at the silliest things, think up funny stories, be interesting and fun and happy. The medicine has stolen some of that - and I know it is the medicine - and I can't wait to get it back. I just want to be fully me again. I want to be inspired to write and talk and be someone that people enjoy being around.

Until I get through all this, I ask that you all keep me in your prayers. Try to be uplifting to each other. No one knows what another person is going through, so we all need to be encouraging.

Peace
--Free

Learning to Breathe

Three days out of the hospital and I am feeling a little more back on my feet. Feel a little more like I can think a little bit more clearly. Still not liking the steroids and the effects I can feel they are having on me.

When I think of what happened to me - all out of nowhere - I am so thankful to God. I could have been lying dead somewhere. What if I'd been driving and run someone over? What if I'd just been somewhere without my family and something had happened?

So many what it if's.

Instead, I ended up with this cruddy disease that I still don't understand, but I am alive and fighting.

I know that people automatically think the same things when they've had a close call with death or disease, but I have got to say it anyway: it makes you think.

The day I was released from the hospital, a friend's sister died of cancer. I didn't know this until I called to check in with my friend. Her sister had fought all the way to Stage Four cancer, and I had just spoken to her myself a few weeks ago. I had told her how wonderful it was that she was still fighting and that she sounded so good and strong while we were talking. She told me that she had put all her faith in the Lord and that He had healed her so far. She wasn't afraid to die. Her sister - my friend - is fighting the same type cancer right now.

When I was being diagnosed, one of the things the doctors had to do was a biopsy on tissue from my lung. That was to determine whether I had sarcoidosis or cancer. It was a horrible procedure that I had to be partly conscious for and I don't know what was worse: that or waiting for the result. Before I knew the result, I remember thinking about dying. I wasn't so much afraid as I was sad. I was sad that I'd be leaving family and friends, sad about things I had or had not done. I was curious about what it would be like to not be alive. I even wondered about how my dying would affect the doctors, nurses and staff I'd met while in the hospital. Mainly, I wondered if my dying would change anything for anyone in a deep way.

Now that I am home and just dealing with the fallout of the Sarc - the bills, what to do with my life and how to cope - I am going to try to enjoy as much of life as I can, worry about as little of it as possible, and be thankful to God for every breath. It took all of this for the Lord to teach me that happiness is an inside job.

Peace
--Free

Family Catchup

For the friends and family who heard I was sick and in hospital and no one really knew what was going on, here's the deal.

I got sick right after my birthday and landed myself in the hospital. Thank God for my family because I would not have gone without them bugging me.  I thought I was just just tired and stressed.

Long story short, I was walking around here, slurring words, tripping over my own two feet, being cranky and tired, etc, etc, etc... without knowing why. This went on for weeks and weeks and was getting worse until recently. I have been diagnosed with some crazy disease called Sarcoidosis. (Leave it to me to get something I can't pronounce. I call it Sarc.) That's what landed me in the hospital from July 4th through yesterday when I was was released. On top of that, the doctors (all of them amazing, by the way!) were getting my ridiculously high blood pressure under control.

Like about everything, there is both too much and not enough information out there about Sarc. I gave up trying to research it and am just paying attention to my doctors - who also admit being a little puzzled by Sarc. The one thing I want to get across to all of you is this: I had Sarc symptoms for a long time and I ignored them. I certainly had High Blood Pressure symptoms that I didn't manage. So, for all of you who are not taking care of yourself - please do. If nothing else, I could have been a lot of healthier these past several months!

I am home now and trying to get a grasp on what this disease and the symptoms mean for me. There is not a lot known about Sarc, but for me, everything just feels weird. I am having some trouble thinking and moving and my body feels a little alien. My eyesight, my movements - even my words and thoughts -  everything feels out of whack. Some of it, I'm sure, is just that I am overwhelmed. The medicines alone baffle me. (It took me 20 minutes to sort out which ones I was taking and when and why.) Right now, I am trying to figure out how this is going to affect the rest of my life. This is my first day out of hospital and facing it all.

Everyone pray for me. Pray that God touches on this disease and the symptoms to heal them. Pray that my blood pressure stays under control and that no more damage is done to this body.

Love,
Free

Laughing In The Rain

The secret to laughing in the rain is to be thankful for your umbrellas. Yeah, that sounds kind of Zen-corny, I know, but it's really true.

I used to let many things get me down, but in the past year or so, I've found that it's better to look at my blessings instead of my worries. For instance, I could be sad because I am nowhere near where I need to be at my age - not in finance, romance or in the normal cycle of life. Talk about being caught in the middle of a life storm... But I choose to be light and joyful because I look at all the umbrellas God has given me: good family, good friends, my physical senses. And I think of the fact that God KNEW to give me the specific family and friends He gave, because He knows they are what I need. (It's only passing-by funny that He could have given me riches, but I wouldn't have gotten the people I have.)

Anyway, my point here is that if I were sad, I'd be spreading that sadness, but God has given me joy that usually manages to shine outwards to others. Who knows what a smile and a sense of peace does for others just by being in the atmosphere? I think it matters.

So please pull out your umbrellas so that you can enjoy whatever the forecast is. Let your joy be good for someone else. Smile at each other, care enough for it to show and let your own attitude teach others how to laugh in their own storms.

(In a sidenote: Last night I thought I was dying. No kidding. Those who know me know that I have severe high blood pressure - it's one of the reasons that I am changing jobs until I get it under control - and I worry all the time about what it's doing to my body. Anyway, I happened to get a massive headache yesterday. This was no ordinary head pain; it got so bad that I couldn't walk for making it worse. I took painkillers and aspirin; I lay down, perfectly still, because any movement aggravated the pain. At about 2am, I started to think that I should wake up the fam or call 911. Finally, I thought that maybe I was just going to stroke out and die. Of course, I didn't die, but realized that I had forgotten to take a medication - which is a whole other story. So I took the med and within half an hour, headache went bye-bye. I have to tell you, though, that the thought of dying was not scary; the only sad thought I had was that I was leaving behind my fam. I've never been so close to dying - that I was aware of - and I am so thankful to God that because of Jesus, I now know that when the time comes for me to go Home, I won't be afraid.)

Peace
--Free