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Showing posts with label living with a chronic illness. Show all posts
Showing posts with label living with a chronic illness. Show all posts

Friday, April 01, 2022

Coping With Life

 It's been a weird and wild few weeks. I finally know what stage I'm at with the CKD (3b); I found a new (and wonderful) rheumatologist since my last one transferred away; I am coping better with the loss of my best friend; I lost my cousin today.

Did I leave out anything? I don't think so.

Life comes at us so fast sometimes that we can't get a close enough look at the many things we pass through. I'm trying to be better about the whole "one day at a time" thing. I can't believe it's taken me so long to realize that I cannot change the past, can't always control the present, and cannot predict the future.

I was joking to one of my nieces earlier that the only thing good that happened in the past few days is that Walmart included my address in the grocery-delivery zone. Damn, that was a long-winded and awful sentence!

When I got the news about my kidneys, it was served up with a side order of "Oh, yeah, and as long as you are on these disease-controlling medicines, they won't get better".

I think I actually laughed when the doctor laid that one out for me. I think my new doctor might think I'm a little nutty.

I'm still upset that my very first nephrologist did not clearly explain dietary restrictions to me. At the time, I was still quite addle-brained from the sarcoidosis. I had so much trouble comprehending anything. Maybe he did say something? Whatever.

My kidney function has already improved since I researched and started eating the right foods. I miss my avocados, Greek yogurt, nuts, and all the green food but... My filtration numbers are so much better that I don't mind. These days, I'm eating many of the things I was avoiding because I didn't think they were as healthy. I still can't believe that my "healthy for the kidney" diet includes pasta, white rice, and white bread over all the whole wheat and green veggies. 

And while I'm talking about food and other ingestibles... Let me just say that oat milk is nasty in coffee. It's weird-tasting and has a slightly slimy texture. It ruins every good coffee I've ever loved. I'm now drinking my Kaladi Brother coffee with either rice milk or, on a good day, a tiny bit of half-and-half and brown sugar. Also, I'm so sick of tofu that I hate looking at those square packs of it. I've had it braised, baked, air-fried, and sauteed. I've fixed it as fake chicken, fake barbeque beef/pork/chicken, and I've even tried to make a stir-fry with it. 

I have discovered some tasty recipes and snacks. I am now in love with alfredo sauce. I like to make a chicken and pasta dish with it. And Boom Chicka popcorn is my everything. It's lighter and airier than my popcorn made in the Ninja. There is a dairy-free ice cream made with cashew milk that I will be erecting a shrine to at some point. 

So, yeah, there are some foods that don't completely disgust me. 

Maybe the best news this year has been the whole Walmart-delivers situation. I was able to order all my groceries and household goods in one go. However, my shopping trips have always been a treat because I get to hang out with my baby brother and lovely SIL. We still hang out. Especially since I now have to go almost an hour away to another town to see my rheumatologist. I'm not a person who loves long car rides. Also, I'm from Alaska where a long car ride is rare. I could get from Anchorage to halfway to the Alcan in the time that some of these Iowa trips take just to shop or get medical care. These people think nothing of driving 200 miles to do something. 

The only thing I don't really want to talk about today is my cousin. I can only say that she was much too sweet and sensitive for this crazy time we are living in. 

Anyway. That's been my life. That's why I have not been on here for a minute. 

Peace

--Free