Healing by Music

 Sometimes, when you are deep in your feelings - whatever those feelings are about, whether anger, love, pain - it's hard to find words to express those feelings. For a while, maybe a couple of weeks or so, I've been in a weird place. My mind gets stuck on thoughts about certain events in my past or loved ones I'm missing. When I get there, I can't unstick the gears and move out of that place. The other week, I was thinking about my best friend who recently died. I couldn't stop thinking of the five months I lived with her when I was going through a really bad time. My mind just got stuck in a bunch of memories about what was happening to me then.

When you're stuck in the quicksand of good thoughts, that's one thing. But there wasn't a lot good about my life during that five-month period - except for the fact that I had family and friends trying hard to keep me sane and whole. My best friend was so crucial to my sanity. She understood how badly my heart ached. She understood - maybe when no one else did - why I was having trouble walking away from a man who was not the right one for me.

So, recently, when thinking about my dearest friend, I somehow let my mind get stuck on the worst things about that time I lived with her. I almost could not get out of bed until the day before yesterday. I just cocooned myself in blankets and re-played bad memory after bad memory after bad memory. I've been stuck like that before but this time just ran me into a bout of depression that was dangerous.

I knew - or felt - that if I could just come out from under for a little bit of brightness, I might be okay. But I couldn't pull myself up. It didn't help at all that our weather has been grey and stormy. Damnit, Iowa.

During bad weather days, I have a habit of listening to music on YouTube. I will pick one song and then just let the algorithm select what follows. Here's what I was finally able to grab hold of and lift myself up.

The music was like air. I felt like I did when I was younger and my mother would hold me and just let me cry - about work, or over a loss, or in anger and frustration. I felt soothed.

Here's what's crazy: I am so ignorant about classical music that I didn't even understand the title of this piece. I had to Google the YouTube title to learn anything about where it comes from. (I can fake my way through a conversation about classical music by tossing out phrases like, "Beethoven's Sonata .... blah blah blah" and hope no one calls me on it. Other than that, music is, for me, like art: I only know what I like.)

So, after days of only leaving my bed to make trips to the bathroom and to get water, I was able to shake off my bedcovers and sit up. I put that song on repeat and listened to it for probably an hour. Then I got out of bed and took a shower (at 5 in the afternoon), washed and combed my nappy hair, and then had a little something to eat. I was up until after midnight, catching up on emails and text messages. When I went back to bed, I didn't just cover my head to keep out the world, but I actually slept and rested.

What is it about music? Why is it that this song was for me like David playing the harp for Saul? I think I figured it out. 

One reason I probably had never heard that particular piece before is that I tend to limit my dabblings in certain parts of art and culture. I'm great about reading any kind of book. When it comes to art, I refuse to consider anything that wanders too far from the likes of Georgia O'Keeffe, Ernie Barnes, or whoever did the Ohio Players album covers. I listen to all types of music - classical, jazz, blues, R&B, Rock, etc - but I get irritated by anything that doesn't immediately fit my ears' ideas of what that music should be. Basically, I'm kind of a cultural bumpkin.

One positive thing about me (I think) is that I can be introspective. I might be screwed up in a lot of ways but I like to understand how and why I am screwed up. So I started thinking about why I limit myself to certain kinds of art, literature, music, food, people, etc. That's a river too long and deep to swim this day but I did come up with why I don't appreciate more genres of music.

Here's the thing (and pardon me for getting poetic and flowery): Music is so diverse that you have to want to or have a reason to understand the different types. I don't have a good ear for good music. That's because I never developed an ear for it. When it comes to music (and some art), I am the Ugly American who only speaks English and wants everyone else to speak enough of it so that I can understand them. And music is a sort of language.

My father loved all kinds of music. ALL kinds. He tried to get me to appreciate the Blues and Jazz. I liked what I liked and pushed the rest under my napkin so I didn't even have to look at it. Yecch. 

It's me with failing at learning a spoken language all over again. I spent some of my early years around mostly Mexican neighbors. The only Spanish words and phrases I remember are ones that can't be spoken in church. Same thing with Welsh. In my early twenties, a friend taught me several phrases and I forgot all of them except how to tell someone to kiss my ass. I even forgot that several years back.

Again, music is like spoken language. It's about all the same emotions and yearnings and pain and sexual desires. Some are in the language of the Blues or in the poetry of Rap, or... You get what I mean.

My problem is, that I have limited myself to speaking and hearing only what I like. There's so much more out there.

That beautiful piece of music that lifted me up has been around since 1880. (And, yeah, my dumbass had to look that up.) That could have been a good thing in my life since I first ever wanted to hear any kind of music.

How sad that I have been missing something that I love, not because I was blind but because I refused to see.

Anyway.

I resolve not to limit myself. I want to at least know what it is I am missing.

Peace

--Free

P.S.: If you can't tell, this is not the best day for my sarc. It's acting up and I am having trouble expressing my thoughts in a coherent way. Thankfully, there is a new specialist at the local hospital and I won't have to drive a couple of counties away to be seen. I should be communicating more clearly soon.

Vegas Memories

Just a bit of a memory stroll today. 

I ran across this and thought of a fun December trip to Vegas a few years ago. 

What a show these guys put on! One of my older brothers and favorite SIL (Psst! They all are my favorites!) had such fun. 

This is what I remember from the day and night we were there: 

• My SIL (from Arizona) was wearing a freaking mini parka because she was cold (what?) in the 68-degree weather. My body was still Alaska-nized/Iowa-ized so I was wearing shorts and drinking anything that had ice in it. 
• I got drunk off 2 drinks) at the bar in Crush with the SIL.
• After Crush, my cheap drunk self thought I was hallucinating when we walked past the Jabba's store and the "mannequins" suddenly came alive for a moment.
• The SIL and I drank some more and drinking made me want to smoke again. I paid something like $15 for a single pack of cigarettes - because I bought them in the hotel instead of going to a convenience store outside down the street... I was more than happy to go back off the tobacco immediately after that trip but I smoked like a hooker's coochie for 2 days.
• The show we had bought tickets for was canceled while we were standing in line to board the flight to Vegas. We decided to go ahead and make the trip. Since we were staying at the Grand where the dancers were being featured, I chose to see the Jabbawockeez Jreamz show instead. We stopped at a street kiosk on the Strip to find another attraction, and...
• the 3 of us tried hard not to laugh out loud on the street as we watched a couple of 80-year-old women who'd been on our flight hilariously cuss out the artist who'd pulled the no-show.
• I (again, coming from Alaska - home of the best pot in the world - or so I've heard) got absolutely wasted just breathing the weed fumes while walking down the Strip. My brother practically had to hold me up. And it's Vegas so no one noticed. 
• I couldn't help myself and started crying (probably cos I was still unintentionally high) while watching the Fountains of Bellagio synced to "Oh, Holy Night".
• The Jreamz show was amazing. I got my hand kissed by a Jabba who came through the audience pre-show and I am to this day trying to understand what is so sexy about a man who can dance even when you have no idea what they look like.
• My brother tried not to show it but he liked the show as much as the SIL and I did - and we were dancing in our seats through the whole show.
• Even at my age, I love being with my family. Being with any of my brothers always makes me feel safe and loved. Being with my SILs makes me feel like part of an exclusive group of crazy-sexy-cool ladies.

This is not the first nor will it be the last time I say this: the best gift my parents ever gave me is my sister and brothers. We don't always like each other but we love each other always. Watching that newer video from the Jabbas brought back a lot of good memories. 

Peace

--Free

Caffeine (via Instant Espresso Powder) is Life Right Now

 Being on my new renal diet for the CKD is going well but only because I found a new way to get my caffeine fix. And let me just pause right now to thank the good Lord in heaven that I can still have my daily coffee. Without regular sex, cigarettes, and alcohol, coffee is life.

If you have checked my blog about this whole CKD thing, you know that I've struggled with adjusting my diet to keep this sarcoidosis (and the sarc meds) from killing my kidneys. So far, so good. I hope. The thing is, I've had to give up a lot of my favorite foods. Cutting back on the food has not bothered me as much as I expected. But the coffee thing...

When I make "regular" coffee - that is, coffee brewed in the machine - I tend to use too much sugar and dairy creamer. I have learned to substitute dairy products with nut and plant creamers. Rice milk and macadamia milk are the two I tolerate best. Still, they seem to weaken the flavor of the coffee. So I have switched over to having a couple of espresso-based drinks each day. And you know what? If I have a good mocha, I don't miss some of my food. Seriously. Not having my Greek yogurt or collard greens or pinto bean stew... Not good on a bad coffee day but, with decent coffee, I can deal.

Keep in mind that just late last year, I bought a new coffee maker. A freaking Ninja that is suddenly on sale - after I took a big chunk of my measly budget to buy one. The same machine is now about 30 bucks cheaper. To make matters worse, I find that I've hardly used the thing in the past three or four weeks. Because... espresso.

After one of my recent doctor's visits - where we had to dang near ride across the state to get to - my family and I stopped so I could treat us to a coffee at an actual shop. I treated myself extra and got a mocha. It was the most delicious thing I've had in a minute. And I realized that I was enjoying coffee for the first time in a while. 

The problem with coffee shop drinks is that they are pricey. And I'd have to actually leave my home to get one. You probably know that I don't like leaving my home. Outside and I are not friends. There are people out there. And germs. And stress. And anxiety. I leave my home for food (when I don't order in), medical care, and family. If a tornado ever touches down here, I will leave to take shelter at the church across the street. Maybe. It depends on how bad the tornado acts up.

Anyway. I was talking about coffee. And my renewed love for espresso.

So. I allow myself to have one espresso-based drink in the morning and another one around midday. If I'm really dragging ass, I will have a second midday drink. The only thing I'm careful about is adding the chocolate sauce. Chocolate is one of those delicious things I can only have in moderation these days. And that's fine. I can skip the chocolate and just have the... Latte? That's the mocha minus the chocolate, right?

The tough thing was finding a cheap way to make espresso. I looked at the various machines. I figured I could swap out the Ninja coffeemaker for a budget espresso maker. Ha! There is no such thing as a budget espresso maker. There are some affordable makers but most of them don't seem to get the best reviews from other users. Mostly though, what bothers me is that some machines look so complicated. I'm pretty sure I could blow myself up just using one. I went to Reddit for help. Some comments were informative but we are talking Reddit so...

Reddit and the coffee subs

When my family learned that I was looking for an espresso maker, they offered to get me one but I don't like them gifting me things outside of Christmas or my birthday. Besides, I'd probably blow up my kitchen trying to mess with an espresso maker. That's a thing, right? Of course, there are the Nespresso machines - and they aren't too, too expensive for the lower-end models but... I quickly realized that Nespresso - or De'Longhi or whoever - isn't making money on the machines. They are making the real bucks on the coffee. 

I got so excited when I found a Nespresso/De'Longhi machine that I could kinda-sorta-afford (only because of the flex plan on one of my credit cards and I have some Amazon credits), that I had it in my cart and ready to go. Thank God for an excellent credit rating, right?

The machine and...

...the payment plan

...Then I went looking for coffee capsules that would work with the machine, and... Yeah, no, that's not going to happen.

I get 35-45 servings from a $12 jar of Nescafe

Anyway.

I now have about 6 machines and coffee packages sitting in my Saved For Later cart on Amazon. In the meantime, I looked around for another way to have espresso. And I found it.

And no worries about a machine

A good brand of instant coffee isn't as awful as most coffee snobs might say but it's not my go-to. The only instant coffees I like for my dalgona coffee are the Aldis Beaumont brand and the standard Nescafe. 

The Nescafe Gold that is imported from Canada (and why is everything Canadian always better than the American version???) is truly gold. 

My brother, who once owned a coffee shop years back, laughed at the idea of making an espresso from an instant powder. Then I made him a mocha. He's not laughing now. I gave him and my SIL a bottle of the Nescafe as a good old Southern "bless your heart". It's how we say "Told you so".

I use Torani chocolate sauce (in moderation) and the only complaint I have is that my drinks never stay as hot as long as the ones from the coffee shop. That's probably because I always serve them in my cute little cup and saucer for eye appeal. Who am I trying to impress? I'm going to try serving them in my short thermal mug from now on.

Now, I am not sure if all instant espresso is as good as this Nescafe. I can tell you that I got some Cafe Bustelo and it's good coffee, in general, but it does not even try to foam the way the Nescafe does. The Nescafe will start to make a crema (?) the minute I add a few drops of the water with no prompting. I stirred and rotated the hell out of the cup with the Bustelo and it was just... yeah.

Messy but you 
get my point

By the way, the Bustelo is chunky (like regular instant) where the Nescafe is truly a fine powder. 

I should mention that A few years ago, I was given a milk frother. I'm almost ashamed to say that I only used it once and that was to make hot chocolate. To be honest, I wasn't sure just how else to use the thing. Thankfully, I saved the manual. The frother has been amazing! (I checked and, sadly, this frother has disappeared from Amazon but someone did a video review of the exact machine I have.)

Here is the drink I made this morning.

So, yeah, I'm down with giving up brewed coffee for espresso. I'd rather get a big hit of caffeine once or twice a day rather than several bland cups of coffee throughout the day.

Best of all is that I can make my lattes and mochas using macadamia or soy milk. The macadamia froths up well (it's what's pictured) and I sometimes add a tablespoon of either half-and-half or some sweet coffee creamer for a boost of fat and sugar. When I'm med-sick and not eating anything during the day, I will add a tablespoon of half-and-half and a tablespoon of heavy cream. Don't judge me.

For those watching ingredients as I have to do, the only one listed on both the Nescafe and Bustelo is coffee.

Like I said, caffeine is life. With the instant espresso powder, I really don't see myself buying an espresso maker anytime soon. I'm not a connoisseur. I'm the same with espresso as I am with wine: if it's wet and tastes good, I'm down with it. And I sometimes slurp.

Peace

--Free

Words. Matter.

 If I ask any random adult on the street to tell me about something from their childhood that still strongly affects them to this day, most answers would probably have to do with something that was verbalized. Words or phrases that were encouraging or not. Names they were called. Nicknames they were given.

When I was about 7 or  8 years old, one of my older brothers joined the military. I answered the house phone the day he made his first call home. I was so excited and probably started babbling about missing him. He cut me off and told me to just go get mom to the phone. As an adult, I know that he wasn't being mean. He probably only had a few minutes to talk and I was wasting them with my girlish rambling. Still, that is the earliest memory I have of my feelings being deeply hurt by someone I loved.

Memories about my mother and the other women elders in my life have much to do with the things they said and how they said them. 

Someone in a Reddit comment or on a Twitter post once remarked that they always felt good whenever an "older black lady" calls them "baby". As in "Don't worry about it, baby". I can relate. I'm black and the sweetest thing a lover ever called me was "baby girl". And that has nothing to do with the daddy issues I actually have. It's just such a loving vocal affection, like calling someone "sweet thang".

Just like yesterday, and in all the yesteryears, today certain fad phrases and slang terms root themselves in our culture. Being older, I don't keep up with currents slang and sayings but I have a lot of nieces and nephews who do. I've heard them go through so many, the words are a blur. 

Bye Felicia. Girl, bye. That part. True dat. Being extra. Suspect or sus. Hooking up.

The younger people in my extended family listen to Rap of so many different styles I can't cope - nasty rap, mumble rap, gangster rap, East Coast and West Coast, and Country rap. Then there are the bands and artists obsessed with weird arrangements that include screaming, crying, and cursing the Lord. They are so overt with their intentions of having meaningless relationships or taking revenge on whoever they are "beefing" with. They don't bother with subtlety. At all.

I grew up listening to Motown, Rock, and Country so I won't talk about the terms we had in "my day" for sex, love, dancing, cheating, yearning, learning, etc. In those dinosaur days, we hinted at lurid sex and highlighted romantic sex (do people even use the term "making love" anymore?) There was a lot of reading between the lines to find the "good stuff". I think the last subtle song about making love was Sade's "Your Love Is King" where she crooned through the joys of climax.

I'm reading a book now that has me falling in love with words all over again - the way "Their Eyes Were Watching God" did years ago. In "The Invisible Life of Addie LaRue", V.E. Schwab does with words what any great jazz or classical composer does with music. I'm more caught up in the way the story is told than I am with the story. Stephen King is like that. Not many of his fans care what story he is telling, they just like hearing him tell it.

Another book I am reading is Eric Metaxas' "Is Atheism Dead?" and I recently told an acquaintance (who is Athiest) that I think they would enjoy the work. I say that because this acquaintance is a person who likes to be challenged with ideas, even the ones that go against his beliefs. The book is not a haranguing, finger-wagging, I'm-right-and-you're-wrong set of arguments in the voice of a televangelist huckster. It's a conversation from someone who doesn't believe what they do just because they believe what they do.

Words matter. As a lot of our parents taught us, it's not what we say but how we say it that matters most. The how part is the key to successful communication. How makes the difference between being rude and gracious; between telling and discussing. Being the daughter of Southerners, I know that there are two ways to hear the phrase "Bless your heart". There is mainly only one way to hear "Why, bless your heart". That "why"? It matters. And putting the accent on any of the words in the phrase... well, you can write a book on polite Southern put-downs and encouragements.

Not what you say but how you say it. 

When I was young, I was misbehaving in public and my mother threatened my life just with a look. No words were needed, but if they had been, trust me, she had an arsenal. 

Words matter. 

Peace

--Free

Milkadamia Macadamia Milk Is...

 (This is cross-posted from my blog about CKD)

 After trying cashew milk - and dang near going broke in doing so - I wanted to try yet another non-dairy milk. I found some macadamia milk from Milkadamia. They had some different flavor/blend choices on Amazon:

• Original
• Unsweetened
• Barista (sweetened)
• Barista (unsweetened)
• Vanilla
• Veggnog Macadamia

Since I hate regular eggnog, the macadamia version made me shudder just to think of it. The Original and Unsweetened were a bit confusing. I mean, is the Original sweet or not? Why don't they label the Original as sweetened or not?

My natural inclination was to go for the Vanilla. I know that the only soy milk I like is the vanilla kind. However, the Milkadamia Vanilla was pricier - running from the mid-30s to over 50 dollars. It might be cheaper to buy some unicorn milk...

I ended up choosing the sweetened Barista version. 

The unsweetened version has 
a red label

Notice that the label doesn't say this is "Sweetened"... I figured out that instead of saying "Sweetened" on their labels, Milkadamia will prominently label the unsweetened version and use a different label color. Child, just say it already!

Most of the reviews mentioned that the Barista is the best-tasting in coffee. And, let's face it, I'm looking for something to use mainly in coffee. I have got to replace the sugary-wonderful Sweet Italian creamer that I'm so in love with.

This stuff sure isn't cheap. I paid about 30 bucks for a pack of 6 32-ounce shelf-stable cartons. Actually, when I started to think about the per-ounce price (less than $0.15) and the more positive-than-dairy effects on my health, it was worth at least trying.

Okay. So. How does this stuff taste?

In coffee, it's not bad. It softens the coffee taste, which is nice, but there is zero sweetness. And I mean none. Dentists must hate this stuff. I really think I will have to find a single carton of the vanilla to see if it's better. 

By the way, there are pros and cons to this brand, depending on your own situation. Looking closer at the labels once I received the shipment, I realized that there are some additives that aren't great. But, again, it all depends on where you are in your health.

sounds good - so far

Until you look closer...

Not bad because I use this by the tablespoon.
Cup by cup though, watch out for those minerals

And these additives are not as prominently
displayed on most retail sites

Like all the other non-dairy options I've tried so far, macadamia milk doesn't have much of the whitening effect I like from a creamer. It's such a visual thing for me with coffee, I guess. I found the only white cups I have to show what a half cup of dark roast coffee looks like before and after adding a tablespoon of the macadamia milk.

Flat black

Tablespoon of macadamia

You can see how watery this product is.

I made a smoothie with the macadamia milk and, again, not bad but... so bland. It's as if there is no weight to this milk. Dairy milk has more of a "fullness" to it, whereas this milk is the same weight as water, in my opinion. Come to think of it, that was the same thing missing with the rice and cashew milk. I think that I will try adding a couple of tablespoons of Greek yogurt next time.

Pretty but... bland

Since I have 5 more cartons of this stuff and I can't afford to be wasteful, I will be cooking with the macadamia milk. I have already tried it in overnight oats and it was decent - watery but decent-tasting. I mean, oatmeal is already so bland. I did find that in using the macadamia milk, I didn't need to add any sugar. It was the same with the cashew milk so I guess there must be some sweetness to these nut milks (And because I have a filthy and somewhat sinful mind, just saying "nut milk" makes me crack up every time! I must be hearing a Chris Rock in my head.)

I have an idea that adding a little butter to macadamia and cashew milk mile give a boost to the flavor and texture. I know that I always loved using ghee in my coffee back when I was on the bullet-coffee train. Butter is another thing in the dairy family I have to limit but I won't need much to bump up the flavor and weight in a cup of coffee.

Anyway, that's how my experience is going so far with macadamia milk. If I had to  I'd rank macadamia, cashew, rice, and soy (vanilla), for overall taste, it would be:

1. Soy vanilla
2. Rice
3. Macadamia
4. Cashew

For use in my coffee:

1. Rice
2. Soy vanilla
3. Macadamia
4. Cashew

For use in smoothies:

1. Soy vanilla
2. Cashew
3. Macadamia

By the way, I probably will not ever drink cashew milk again. I think I mentioned in another post that it seemed to be irritating my skin. My face became itchy the first day and was trying to break out. I never have problems with my skin even though it's sensitive. I couldn't use any of my moisturizers and had to pat my face down with water and honey every few hours. Very weird. After I stopped drinking it, my skin started to calm down after about a day. I had about half of the one (almost-8-dollar) carton so I gave it to my neighbor. I warned her about what it did to my skin but she hasn't reported any problems.

I'm going to have to ask around about coconut milk creamers. ..

Peace

--Free

Cashew Milk Is...

(This is a cross-post from my blog about CKD.)

In trying to get away from cow milk and other creamers filled with the stuff I can't have too much of, I am going plant-based. (NOTE: This one has 145mg potassium - but that is for each 8-ounce glass. I use about 1.5 to 2.5 tablespoons at a time, depending on the amount of coffee I am drinking.)

I've been trying alternatives to milk-based creamers for my coffee and, after trying soy, almond, and oat, I landed on rice milk. Then I tried cashew milk.

Cashew milk might be my favorite plant-based option for using in coffee. I've still got to try the barista blend of macadamia milk but for now, cashew milk is a winner.

Expensive but tasty

I heard so much good stuff about oat milk as a coffee creamer that I splurged on a single carton only to be moderately impressed. At first. Then I found it gross. At first, it added some of the creaminess that I miss with rice milk. It added weight to the coffee if that makes sense. Rice milk is good because it "softens" the coffee so that I can drink it without adding any additional sugar or cow milk creamer. But it is so thin that I got bored with the flavor. I could drink my morning coffee without the bitterness but I didn't look forward to it.

Elmhurst cashew milk is "clean"

Oat milk gave my coffee a nice feel in my mouth - at first - but then I noticed a weird texture that was slightly... slimy? Once I got that notion in my head I couldn't get rid of it. I gave the oat milk to a neighbor who loves it. Different strokes.

Almond milk is another one that people rave about. I do not see why. To me, it's bland but unpleasant. I never was crazy about almond milk when I first tried it a few years ago. I still don't like it and it does not one positive thing for coffee, in my opinion.

I have always liked soy milk - as long as it has a bit of vanilla and sweetener in it. It's been a favorite for smoothies and cereals. As a matter of fact, Silk's vanilla soy reminds me of the leftover milk from sweetened cereal. Drinking "cereal milk" was always the best part of some of my childhood breakfasts.

Plain soy is not a favorite.

Cashew milk is totally new for me. Also, I now know not to buy it in my local health food store if I don't want to take out a personal loan to do so. What a ripoff! Almost 8 bucks for a carton on our Main Street. Eight dollars. For a quart. Serves me right for shopping like a tourist. However, this brand is about the same price on Amazon. Must be worth it.

Anyway.

Not bad since I only use
a couple of tablespoons in my coffee

I tried a very "clean" brand called Elmhurst. Its ingredients are cashews and water. Period. Can't get any cleaner than that. I was surprised at how much I like it in my coffee. Of course, I had to add a couple of teaspoons of brown sugar. It lightened (or whitened) my coffee which is a big thing to me for some reason. It softened the flavor a lot. I really enjoyed the way it made my coffee less bitter without killing any of the actual coffee flavors the way a heavy and sweetened creamer can.

By the way, the taste of this right out of the glass is fairly bland. There is some minor kind of a back taste that I can't place - a soft nutty flavor, maybe? It's not bad and it reminds me much of low- or non-fat milk. Then again, I don't like plain cow milk out of the glass, so...

The one problem with Cashew milk is availability. Other than on Main Street, the only place I can find it around here is at Target. Apparently, it's a popular milk alternative because Target sells out of it quickly. While I was out for a doctor's appointment, I put a carton in my online cart to pick up but it was sold out before I could get to check out and pay for it. Wow.

Amazon has a ton of macadamia milk - sweetened, unsweetened, regular, or "barista blend" - but cashew milk is harder to find. 

"stains" a glass similar to cow milk

Okay.

Now I am going to give macadamia milk. The only problem with that is I have to find it in a single carton. Amazon sells it in multi-carton packs. At least, that is true for the barista blend that is said to be best for coffee. I will have to let you know what I think of it.

By the way, my kidneys are doing well. Well, not well but they are holding steady. This semi-renal diet I'm on is working well and I am even losing weight.

Peace

--Free

Coping With Life

 It's been a weird and wild few weeks. I finally know what stage I'm at with the CKD (3b); I found a new (and wonderful) rheumatologist since my last one transferred away; I am coping better with the loss of my best friend; I lost my cousin today.

Did I leave out anything? I don't think so.

Life comes at us so fast sometimes that we can't get a close enough look at the many things we pass through. I'm trying to be better about the whole "one day at a time" thing. I can't believe it's taken me so long to realize that I cannot change the past, can't always control the present, and cannot predict the future.

I was joking to one of my nieces earlier that the only thing good that happened in the past few days is that Walmart included my address in the grocery-delivery zone. Damn, that was a long-winded and awful sentence!

When I got the news about my kidneys, it was served up with a side order of "Oh, yeah, and as long as you are on these disease-controlling medicines, they won't get better".

I think I actually laughed when the doctor laid that one out for me. I think my new doctor might think I'm a little nutty.

I'm still upset that my very first nephrologist did not clearly explain dietary restrictions to me. At the time, I was still quite addle-brained from the sarcoidosis. I had so much trouble comprehending anything. Maybe he did say something? Whatever.

My kidney function has already improved since I researched and started eating the right foods. I miss my avocados, Greek yogurt, nuts, and all the green food but... My filtration numbers are so much better that I don't mind. These days, I'm eating many of the things I was avoiding because I didn't think they were as healthy. I still can't believe that my "healthy for the kidney" diet includes pasta, white rice, and white bread over all the whole wheat and green veggies. 

And while I'm talking about food and other ingestibles... Let me just say that oat milk is nasty in coffee. It's weird-tasting and has a slightly slimy texture. It ruins every good coffee I've ever loved. I'm now drinking my Kaladi Brother coffee with either rice milk or, on a good day, a tiny bit of half-and-half and brown sugar. Also, I'm so sick of tofu that I hate looking at those square packs of it. I've had it braised, baked, air-fried, and sauteed. I've fixed it as fake chicken, fake barbeque beef/pork/chicken, and I've even tried to make a stir-fry with it. 

I have discovered some tasty recipes and snacks. I am now in love with alfredo sauce. I like to make a chicken and pasta dish with it. And Boom Chicka popcorn is my everything. It's lighter and airier than my popcorn made in the Ninja. There is a dairy-free ice cream made with cashew milk that I will be erecting a shrine to at some point. 

So, yeah, there are some foods that don't completely disgust me. 

Maybe the best news this year has been the whole Walmart-delivers situation. I was able to order all my groceries and household goods in one go. However, my shopping trips have always been a treat because I get to hang out with my baby brother and lovely SIL. We still hang out. Especially since I now have to go almost an hour away to another town to see my rheumatologist. I'm not a person who loves long car rides. Also, I'm from Alaska where a long car ride is rare. I could get from Anchorage to halfway to the Alcan in the time that some of these Iowa trips take just to shop or get medical care. These people think nothing of driving 200 miles to do something. 

The only thing I don't really want to talk about today is my cousin. I can only say that she was much too sweet and sensitive for this crazy time we are living in. 

Anyway. That's been my life. That's why I have not been on here for a minute. 

Peace

--Free

Open Letter to Doctors, Nurse & Dieticians

 So. I have had this whole CKD thing on my mind night and day lately. After I got my last lab results back, I spent several hours just sitting in the dark of my room, crying and frustrated, and mad. Praying helps. Thinking of all that I have to be grateful for helps. But I'm still just so irritated.

I'm irritated with myself, irritated with this damn sarcoidosis, irritated with the lack of public information about health issues, and just irritated with it all.

The sarcoidosis started this ball rolling but the blame for it picking up speed lies first with me. I let my weight balloon. I wasn't being careful about reading nutrition labels. I didn't take the time to realize that "eating healthy" in general doesn't mean "healthy for everyone". I didn't pay enough attention to my own health. I was so focused on my sarcoidosis in general that I didn't think enough about the specifics.

The biggest frustration is that I waited until now to educate myself about CKD. The next irritation is that in the US we don't have enough public information about nutrition and diet. We have a lot of noise about it but not enough useful information.

Nutrition labels are focused on the basis but they are not always on the up and up. The clearest information on a nutrition label is for anyone trying to lose weight. That even gets a little tricky when there is hidden or unclear labeling of ingredients.

Labels can disguise sugars and salts and other minerals by playing funky games with the names of those things. The average person trying to lower their sodium or sugar intake might not know to look for the different ways those things are named.

I found one article online that points out the different ways to "find sodium". Find sodium - because it might be hidden. Some ways sodium appears on labels?

• Monosodium glutamate, or MSG (often added to Chinese food)
• Sodium citrate
• Sodium sulfite
• Sodium caseinate
• Sodium benzoate
• Sodium hydroxide
• Disodium phosphate

At least, in this case of this list, "sodium" is part of the name. The other part of this though is when we are drawn to a particular product because of how it's described on the front label. This same article points out how the touted "low sodium", "unsalted", "sodium-free", "very low sodium", "light" and "reduced" sodium mean. For me with CKD, I'd need to really be careful about buying items labeled as "light" and "reduced" sodium. And I will be careful - now that I know.

Let's look at sugar.

As with the sodium identifiers above, there are some sugars that are fairly obvious. But then again, there are so many types of sugar that unless you are involved with food on a more-than-average level, you might miss a lot of them. Here are just some from this page where they note that 

"Ingredients are listed by weight on packaged foods, with the main ingredients listed first. The more of one item, the higher up on the list it appears. 

Food manufacturers often take advantage of this. To make their products appear healthier, some use smaller amounts of three or four types of sugar in a single product."

And some of the names of these sweeteners?   

1. Barley malt
2. Beet sugar
3. Brown sugar
4. Buttered sugar
5. Cane juice crystals
6. Cane sugar
7. Caster sugar
8. Coconut sugar
9. Corn sweetener
10. Crystalline fructose
11. Date sugar
12. Dextran, malt powder
13. Ethyl maltol
14. Fruit juice concentrate
15. Golden sugar
16. Invert sugar
17. Maltodextrin
18. Maltose
19. Muscovado sugar
20. Panela
21. Palm sugar
22. Organic raw sugar
23. Rapadura sugar
24. Evaporated cane juice
25. Confectioner’s (powdered) sugar

Of that list of 25 items, I'd say that 11 are harder to spot as being "sugar" or a sweetener - unless you pay close attention. And I think that brands count on us not paying attention.

Another thing I recently realized is that some things are not even evident on food labels. For example, phosphorus is something I have to watch in my diet. Wanna try identifying that on labels? I didn't even know it was a thing to watch for before now...

What frustrates me about this is that brands are allowed to manipulate the information on labels at all. If cigarettes come with warning labels - and only x amount of people smoke them - shouldn't food labels be held to a higher standard? I mean, everyone eats. From the moment of conception, we are in some way affected by nutrition.

Remember when we found out that "diet" sodas weren't as healthy as would be assumed by the use of the word "diet"? 

So I am frustrated as much by the food industry as and the guidelines they are allowed to play with as I am by myself.

I didn't just now start to pay attention to my health. If you've read my blog at all, you've known about all the times I was tweaking my diet to add what I thought of as healthy foods. For the past couple of years, I've been eating lots and lots of greens and healthy fats. I've barely eaten any fast food at all in over 4 years. The only real thing I knew that I was playing fast and loose with was red meat. Even then I would go for the lean stuff. And I damn near went into debt the past year by switching over to fish and seafood. I stopped using cow dairy (except for my coffee creamers) and went full soy. I started eating tofu. 

Had I better educated myself I would have known that all green stuff isn't good for CKD. I should NOT have been eating bunches and bunches of collard greens with "low sodium" seasonings. I'd have known to watch for some of the "good fats" like my beloved avocados. I'd have known that switching from chips and cookies to seeds and nuts wasn't the smartest thing. I'd have known not to add chia seeds to my diet.

I right now have (or have given away) a king's ransom of "healthy" foods I can no longer freely indulge in:

• A jug of chia seeds that I was adding to daily smoothies of spinach and fruits.
• 3 different bags of brown rice and 1 bag of wild rice
• whole-grain pasta noodles
• veggies noodles
• whole-grain bread mix to make in my bread machine
• canned and frozen mixed vegetables 
• bags and bags of pinto beans
• frozen spinach
• tomato paste and sauce and stewed tomatoes (2 of the cans were reduced sodium)
• pasta sauce
• refried beans
• whole-grain tortillas

And on and on.

I was proud of how I was eating. I gave up orange juice last year when I was warned about it and started buying pineapple juice - for my spinach and banana smoothies!

So, basically, I was probably being kinder to my kidneys when I was eating a lot of pasta and rice and yellow cake with cream cheese frosting...

The thing that has made me maddest is that, if there were more specific food and nutrition education, there would be fewer people dealing with CKD, high blood pressure, diabetes, etc.

What I knew before now was to avoid pork, processed foods, orange juice, and anything with a lot of seasoning. What I didn't know was to avoid foods that are often seen as "healthy". Those foods are healthy for some or even most people but not for me. Not for anyone else with CKD.. 

Don't just tell people that too much salt and sugar is bad for them. Tell them where to find salt and sugar in common foods. And try to be clearer about the yays and nays of daily nutrition. Especially when they are dealing with CKD or weight issues or heart issues.

Anyway.

I will be seeing a new nephrologist soon. The first thing I am going to ask for is to see a dietician. I think I mentioned that before. I don't know. Can't remember because I'm too hungry and stressed out. I believe I mentioned that I'm down to popcorn, toast, and coffee with rice milk at this point. 

Peace

--Free

The Popcorn Diet

 Heads Up: I've got some draft posts (not yet published here) on the subject of my bad kidneys. Just telling you that so when I finally post everything you won't be confused. I'm posting this one now because it's an easy rant...

So.

I've been having a hell of a time trying to figure out what I can and cannot eat in order to stop any further damage to my damn kidneys. Sorry for the fussing but... this year has been sheer madness at less than 3 months in!

Anyway. Back to the kidney thing.

At my last infusion, my lab results showed creatinine levels that have once again jumped back into the stratosphere. They go up and down but lately, they mostly have only been going up. A wee little bit at a time. ("Wee", get it?)

Anyway, I am so deadly terrified of having to ever go on dialysis that I am working my hardest to watch everything that goes into my mouth at this point. The one crazy thing is, I never had to worry about my kidneys until this damn sarcoidosis. I never was seriously sick before this. One side of my family has kidney problems, the other side tends to get cancer. I never had either.  The other crazy thing is, my latest creatinine jump is probably from all the "healthy" eating I was doing in the weeks before the last infusion. I will get to that in a minute.

Again. Anyway.

So I am over here giving myself a headache trying to decipher nutrition labels and other information to see what kind of foods I can safely enjoy. I made lists of those that are okay, not-so-okay, and no-no-no. Then I would find contradictory information. Then I would have to move foods from one list to another.

When I ended up crying and feeling dumb because my brain kept getting all muddled up, I decided to find a food app specific for CKD (chronic kidney disease). Guess what? There are apps for almost every ailment known to modern man but just about none for what I need.

Next, I tried just organizing a bunch of lists, recipes, suggestions, etc using One Note. Fabulous thing, that One Note (but only "for Windows 10 version). I've got most of my life organized in my DIY notebook system and One Note. One Note is more for things like recipes and useful info I find online that I will need to refer back to often. And I already told you how my notebook system rules my daily life.

While One Note is great for clipping and storing all the information about kidney health, foods, etc., it still isn't great for my practical needs like grocery shopping and meal planning and won't be until I get myself familiar with all the info.

I did go back to using the Cronometer app I liked once when I was playing at losing weight. So far, it's the best app I've used just to keep an eye on what I call the Big Three: potassium, phosphorous, and sodium. It's so good in fact, that I want to find out if my insurance might cover the Pro version. With that one, I can share the information with my doctors. Very cool, right? For now, I am using some of the money I'm saving on groceries to pay monthly for the Gold version. It's ridiculously pricey (IMO) at almost 10 bucks (with tax) per month but it's so useful. There's no better way I know right now for tracking the Big Three.

Like with all apps, I have to log or scan everything I eat. Okay. Fine. That's a real pain in the butt. However, I am determined NOT TO BE ON DIALYSIS anytime soon. And by "soon" I mean before I die of almost anything else. 

Until I can meet with the nephrologist again (and, hopefully, a dietician who doesn't hate food), I am just being so, so careful. The easiest way for me to do this is to stick to the few things that should be safe to eat. This is what I have so far:

• Rice milk (not enriched because, somehow, enriched is worse for me? I can't remember why.)
• Coffee (I am sticking to a 10-ounce serving in the morning & softened with the rice milk.)
• Popcorn - made with kernels and the tiniest bit of oil. I season it with 1/4 teaspoon of sea salt. For some reason, sea salt is supposed to be better than regular table salt. I don't remember where I read that or why it is.
• Rice cakes. 
• Apples and red grapes. Love the grapes but only like apples when I want on. I'm trying to decide if I can just use them for some kind of decent dessert dish.
• Cabbage. I like cabbage when I like cabbage but find it a pain in the tail to deal with.
• Water, water, water, and more water.

The first day I was trying to use the Cronometer app, I had coffee with rice milk, popcorn, and a rice cake. The phosphorus and potassium levels seemed good but my sodium level was at 70% of the daily allowance. I set that daily allowance from reading on what I should have - 2300mg or less. And I was gassy all day. Ugh. Actually, I just realized that I did not use all my salt for the day. I still have some in the little container I keep the day's sea salt in.

and those carbs...

Last night (of my second day using the app), I fasted. I figure if I throw in fasting from 7pm to 11am, I am not missing much. It's not like I'm excited to eat anything I'm allowed.

Again, anyway...

So today is going to be all about trying not to think about the delicious food I can't have. Or rather, not thinking about those foods. 

To be honest, this will probably be the best thing ever for losing weight. I just can't deal with so much meal prep. I've gotten used to fixing enough of something to last for a few days. A big pot of pinto beans cooked with some ground beef to eat with rice or cornbread or tortillas. Sandwiches with avocado and tomato. Some on-sale shrimp or fish to smother in garlic and onions. A baked potato or sweet potato. A big spinach salad with some poppyseed dressing. And my favorite "healthy" meal of nothing but collard greens to eat with fresh tomato and onions.

I think I'm up to Crazy Thing #3 here: Everything I thought I was eating that was healthy is not so healthy for me. For the last several weeks - maybe even the last few months - I've been eating green stuff, fish, seafood, whole grains. I actually hadn't had but maybe one loaf of plain white bread in about 4 months because I was buying the pricier whole wheat and high-grain stuff with nuts and seeds in it. Because I thought that was healthy!

Yesterday, as I was popping corn in my beloved Christmas gift Ninja, I realized that popping corn may be all I will be using that appliance for. At least until I can get this new CKD diet down.

So yeah. Woe is me. 

And I do realize that I should stop ranting and whining and be thankful. Thankful that I am not (yet) living in a war zone. That I have access to healthcare. That I have a roof over my head and food at all in my fridge. And I am thankful. I just needed to rant a bit.

Peace

--Free

My Good (?) Deed

Well, I either did a good deed or created a monster...

As some of you know, I lost my best friend recently when she died. I've been feeling so down that I just haven't known what to do with myself. I was walking around in a bit of a haze.

Last week, before everything really started going downhill for my friend's health, I was worried but hopeful. I ran into one of my elderly neighbors in the lobby. She looked as lonely as I felt sad so I went over to say good morning. I asked how she was and she told me that she was just so bored since leaving her old home. She lived on a farm at one point but I don't know if that is what she meant. I know that she is widowed. She told me that her kids had the bright idea to buy her a computer. What she didn't understand was what they thought she could do with something like a computer.

I said that I'd be glad to help her learn the basics. I said there were some things to do that weren't hard to get the hang of - watch videos and maybe read the news... She thought that was stupid. (Iowa people are blunt but so nice about it that you don't mind.)

She mentioned Facebook. She heard everyone talking about it all the time. Ugh! I loathe Facebook but...

Anyway, later on, I went up to her place and helped her set up a Facebook account. We found her kids and some grandkids and got her friended and connected to a few people. The kids are tickled that she is online. And that laptop they got her is pretty smooth! I showed her some games in the Windows store. And then...

Oh boy.

Then I showed her Farmville. Who knew that Farmville was in the Windows Store? I didn't. I've been sad ever since my old Farmville 2 farm went stagnant a couple of years ago...

I told my neighbor about the game and she was curious. How do you "farm" with a computer? What do you farm? What is the point? Doesn't it seem kind of silly?

Her eyes lit up after I downloaded the game and got it set up for her. At first, she still thought it was a little silly but... kind of fun. I quickly leveled her up to where she had some crops and trees and a few other basics. 

Oh boy. She was loving the idea of a virtual, colorful, noisy farm.

What does she love most? That she doesn't have to mess with the keyboard. She can use the mouse to do everything. She doesn't like the keyboard at all! The keyboard is what terrifies her most about a computer because she doesn't like typing. She does love using that mouse though.

Two hours in, she was playing Farmville on her own. I left her to it and said I'd come back up to help her set up her email account contacts if she wanted. I don't even think she heard me.

This morning, I finally pulled myself together enough to be around people without breaking into tears. I thought about my neighbor and went to see how she and her computer are getting along.

Well, she isn't interested in email or any more social media stuff. She likes looking at her kids' pictures on Facebook but her main groove is her farm. In less than a week, she is leveled up to having more crops and trees. She is trying to earn enough keys to get some of the nicer animals...

Guys, it was so cute. When I got there, she was working that farm like it was for a retirement pension. She was harvesting crops and racking up points like crazy. She could barely talk to me for taking care of her make-believe farm!

I love it. She is really good at playing the game. She doesn't quite get the whole "neighbor" farmer thing - liking or adding people - so I had to show her how to do that. She can trade goods and items with other players but doesn't use the chat feature. Mostly, I think she enjoys the sounds, colors, and interaction of the game. She had the sound up so loud that I could hear mooing and bleating from outside in the hallway. Her monitor is a nice 17-inch one with awesome graphics. I'm so jealous! She has it set up on a nice table that rolls over her lap while she sits in her favorite chair.

When I was up there, she had her snack of berries and melon pieces on a side table and her phone sitting in reach. I'm pretty sure I won't see her sitting in the lobby looking sad and lonely anymore.

I sat there watching her work her farm for a while. She was totally engaged. She even knows better than to spend money buying extras. She said that what she likes is that she can have so much fun without it costing her anything. (Yeah, older Iowans tend to be very cheap frugal also!)

Right now, I'm not going to bother her with setting up any more social media accounts. As far as the email, all she needs it for is to sign into her Facebook and farm. I don't think she cares if she gets any mail or not.

I left her to it. 

I'm thinking now that, where games can be timewasters for some people, they might be useful for the elderly. I'm pretty sure that it's good for my neighbor to keep her brain active. Farmville is a game but it ain't for sissies. There is a reason I rarely play it. It's almost as complicated to keep up with as running a household! For my neighbor though, it gives her something to do and she doesn't have to wait for someone to come and join in. 

Maybe we ought to teach more of our parents and grandparents to use games on computers? If they can't get out by themselves - like my neighbor - and their kids are busy with work and their own kids and such, something like Farmville is a great time-filler.

I feel better knowing that my neighbor has found something she enjoys that doesn't depend on waiting for other people to show up. I'm pretty sure that she's going to be showing some of the other folks how to play Farmville. 

Peace

--Free

**USEFUL** Organizing for the Unorganized

Because of a medical issue, I have great difficulty in organizing and keeping track of important information. I live alone and no longer have the same close-by support system to help me take care of paying bills and keeping track of medications. Now I also have to deal with keeping on top of different doctors, bills, and other life-is-messy stuff. 

I had to come up with a fairly simple system to keep the most important stuff organized. My best friend and I devised a little system a few years or so ago. Recently, she was suddenly very ill and in hospital for days and I'm sure that her family appreciated her having most of her important day-to-day stuff in some kind of order. Sadly, my friend passed away. In my grief, I'm taking time to post about how we set up our little "order out of chaos" system.

What I Use:

• Spiral notebooks. The cheaper, the better. I use one spiral for "general stuff" (I will explain that and another just for bills and regular payments that I call my Bill Pay sheet). You should arrange a system that works best for you.
• Pens and/or pencils (in at least 3 different colors. I use blue, black, and red. A permanent marker with a fine tip is also useful.
• Highlighters in at least 2 colors. You may want to add more.
• Sticky notes. They don't have to be the pricy name brand type but should not fall off easily. (I will tell you later how I have started making my own.)
• Colored tabs or something to "flag" pages and sections. I have cheap tabs that I can write on and reposition.
• A stapler and/or good paper clips.

What I do for my general information:

• If I talk to anyone about anything important - for example, medical insurance or my apartment lease, etc. - I try to immediately record the information in the spiral. At a minimum, I note the date and time and who I was speaking with, and why. If I don't have my spiral, I jot notes on any piece of paper that I can copy, clip or staple into my spiral later.
• I make a tab/flag for each situation. If I make a note about my apartment lease, I make a tab for "Apartment" or "Lease" and try to leave a few blank pages behind it in case I need to add more information later. This helps me find things at a glance when I need to.
• When I fill up a spiral, I start another. I try to keep all the old spirals bound together by type - General, Bills, Medical, etc. I always mark the year on the front.
• I will staple or clip the small relevant loose notes and receipts into the appropriate space in the spiral. If something is too bulky, I will put it into a baggie labeled so I know which spiral and section it belongs to. Cheap envelopes are also good for holding receipts and other flyway papers.

What I do for monthly/regular bill payments (Bill Pay sheet):

• I typed up a sheet listing my set monthly bills to be paid. You want to have at least a year's worth (12). I was able to print mine out but you can handwrite them or have copies made at the library or a store.
• For each month, I show a running tally similar to a basic checkbook with-
• the starting dollar amount or balance that I have to work with
• on each bill line, I show the amount that is due and the amount that I am paying. I subtract what I have minus what I paid, and show the balance left. I move the balance to the next line and repeat.
• I leave space on one side of the columns to make whatever notes I want. I usually note whether I am paying any extra on a bill or if it is an auto-pay, etc.
• I leave space at the bottom or I use the back to make any notes throughout the rest of the month about what I am doing with the remaining balance of my budget - food purchases, unexpected charges, etc.

Of course, I make small changes to my system as I need and you have to practice to see what works for you. I recently changed my "Bill Pay" sheet to add things like the account numbers I need to sign in to pay and the due dates so I don't have to hunt for the information every time.

I pay all my bills at the first of the month even if they are due mid-month. Even if you don't actually pay the bill at that time, you can tally it so you have an idea of your budget.

Last year, I started just stapling my Bill Pay sheet to a page in the spiral because that leaves me more room to jot the many notes I take all the rest of the month. 

It's not pretty but it works. 

You can see that I put a lot of wear and tear on my notebooks! That's because I have to refer back to them so often.

Another thing that I started about 2 years ago is keeping a spiral that is just for information from and for my doctors. I only see my specialist about every 3 months. By the time I get to appointments and he or she is asking, I will have forgotten any specific issues I had in the previous months. One of my doctors is great about printing out info for me to take home - future appointments, changes to make to my diet and exercise, etc. My other doctors tend to forget to do that so I have started taking detailed notes during or immediately afterward. Or my family will mention what they are observing about my health that I need to make a note of.

Keeping track of
important calls...

Even more recently since I changed to a better Medicare plan, I started keeping a whole other notebook for that. I keep track of benefits I'm using or paid OTC stuff I can order, etc.

The bottom line is when you have any kind of issue with your health or memory, etc. you have to be your own advocate and caretaker. I am fortunate to have the best family ever but I live alone. I can't afford to misremember something important like a bill, medication, or something else that impacts my life so seriously.

Maybe you don't even have a specific age- or health-related situation. Maybe you are just disorganized in general. Maybe you have a family member that you are helping. You could set this system up and use it to help them stay on track. At any rate, I hope it's truly useful. It's literally been a life-saver for me.

My mind is very scattered this week & I wanted to come back and add anything I may have missed...

You can make your own Sticky Notes (cheaper than the name Post *ts...) by getting some of this cheap glue. I use scratch paper of cheap newsprint that I cut into different size squares. If you apply the glue to the paper and wait 60 seconds before attaching it to another piece (and another, etc), you can easily re-attach those papers to your notebook. DIY stickies.

I use either pencils or erasable ink for writing in my notebooks. Don't use erasable ink though on anything important such as official documents - or if the paperwork will be exposed to high heat. My Rocketbook ink pens are made to wash away with water or disappear with high heat. I really prefer mechanical pencils for my notes because the lead lasts longer and is cheaper to replace.

I like to keep business-length envelopes around. You can staple them into your notebook to hold a batch of receipts (medical, bills, etc). That way you won't have bits of small papers flapping around in your notebooks.

Have one spot in your home where you can store the accumulation of notebooks. I store mine under a writing desk near my emergency contact stuff. I arrange them by month/year or just year. If we have a fire or other emergency, time allowing, I will grab the most recent stuff.

Make sure that someone in your family or circle of friends knows you have the notebooks. If something happens and they need to help you take care of business, they will at least have somewhere to start.

Setting this up is a lot less complicated than it sounds. Just make a system that works best for you. The main thing is to have some kind of order in the chaos of your life when it comes to important stuff like medical or finances. 

Peace

--Free